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#1 | |||
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Member
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This is going to sound really strange - but it's the affirmation that I am not completely nuts or just plain uncoordinated that is making me feel better.
I had my six-monthly MRI/consultation with my Neuro today, and he finally verified that I had a lesion on my spine that is likely the cause of a couple of falls that I have had in the last six months. My earlier fall caused torn muscles, swelling, lots of physio, and pain. He picked it up and told me about it, before I told him that I had had another fall and was currently horribly embarrassed and quite black-and-blue from my undignified landing. He had seen the lesion before (on my last scan a few months ago), but wanted to see it clearly from two different planes (???) before he said anything. Anyhoo, I am feeling validated that my fall last weekend in front of 50 party guests butt-first into pot-plants and gardens, while shameful, excrutiatingly embarrassing and somewhat comical, was actually justified. He has prescribed me with Topamax - anyone else used this one? I would appreciate any insight into this new drug. Thanks heaps Lyn ![]()
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#2 | ||
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Senior Member
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So, sending engraved notes to the party goers w MRI evidence?
Too not funny. Glad you don't feel Nuts- I hate that. Validation is crazy good. ANN |
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#3 | |||
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Grand Magnate
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i'm not familiar with topamax but i know others are.
i'm glad you're starting to get answers. did he venture to say what his diagnosis (dx) is?
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#4 | |||
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Member
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The Dx is fine - RRMS in 2001. With 'multiple lesions in all the 'right' places, and also lots in my brain stem, and spine (but most of the are faded out and not active - apart from this recent one.
Cheers Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#5 | |||
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Member
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Topamax is one of the anti-epilieptic drugs - tegretol and epilem are two others. They may have different names depending on where in the world you are.
Hoping that this works to re-wire this setting in my brain that my leg seems to have switched on causing me to collapse at inopportune times. Cheers Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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"Thanks for this!" says: | SallyC (09-20-2012) |
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#6 | |||
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Senior Member
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Nice to be validated, isn't it? Hope this lesion calms down soon!
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RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
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