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-   -   I also have a question for diagnosed MS'ers (https://www.neurotalk.org/multiple-sclerosis/176881-question-diagnosed-msers.html)

SDFencer 09-23-2012 12:09 PM

Quote:

Originally Posted by kicker (Post 916676)
Never a headache, no diploma - but very PPMS. So is Aarcyn. Please do not self-DX. Find a doctor you can work with, work as a team on this stuff. Some of them doctors are pretty smart and kind of nice (Mine is kind of cute, but really does that matter?). Took me 5 tries,before liking my current one. No, he can't really cure or help me (I see he knows that too and I like that) , but I knew that going in. Everyone is so different from another, don't try to listen to others to look at yourself.

I can't help it. Being both a bioscience undergrad and an info guy (OK, I'm a Jewish male too. I crack myself up) I do all this.

Mariel 09-24-2012 11:17 AM

There are other things besides MS which might make you ache all over. I was aching all over worse than before when I finally was dx'd with Porphyria. I lived in San Diego too, and it was a high "ache" belt for me, with all the mold, although I miss it so much here in the high desert, where I ache less. I don't know why you ache but I believe it is not just "old age". I don't know of a good doctor still practicing in San Diego who could think about other possibilities for you. I found Scripps to be my best place, but they did not diagnose my Porphyria; no one in California did. I understand your confusion. We moved away from San Diego and the whole west coast because of me having worse symptoms there. Possibly a starting place for you would be to go to a Hematologist at Scripps Medical Center--that would be just playing roulette, to hope for a dx there, but I found Scripps to be among the best there, as I said. New Mexico does not have total medical care, but it is at least "dryer".


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