(((((Kristie))))) A big hug for you. I hope you all enjoy your halloween...BOOOOOO!!!

I don't really know how to word this because I don't mean it as an insult to all of you that have answered dear Sally our cheerleader. But after reading your posts it makes me feel wonderful. I don't have even half of what all of you guys have and am so grateful. I sometimes regret having my own little pity parties after reading who it could be like.

Hi Sal

Reasonably quiet on the Western Front for me. Sick of nose bleeds (low platelets) and having a tingling face, arms and legs (which I discovered - much to my relief is caused by Topamax the new med that I am on - no big deal just glad to know the cause).

For whatever reason, I seem to burst into tears at any time, given any contentious/sensitive issue, but apart from that, assuming that nobody ruffles my feathers all is good in my world.

Cheers

Lyn

((((Lyn)))), I was right there with you on the verge of tears, this morning, whilst cleaning old doggy's morning mess he leaves for me. I got up at 11:00 and just now 1:00 sitting down to my PC and breakfast.

In the old days, it would have taken me 30 mins tops. I sure do understand, the ruffled feathers bit too.

Be well stay steady, we need you around here..

Please feel better everyone and I mean in mind.

For a few months now I have been feeling much better. before that everything at once was going on in my body, I had to write on my list more than once a day sometimes now it is where I can keep up with the things that are happening.

I notice that my right index finger is bent at the top joint. when it happen I have no idea, it is crooked as can be. it don't hurt but all the others are straight so it can really be seen. still get sharp pains every now and again throughout my arms and hands and now I have pockets of fluid in the joints the last one I notice yesterday is in my elbow the left one but not the right one that I lean on all the time.

I just moved from Philadelphia PA to Clarkston Ga and I have stairs now to go up and down and the first few weeks were hell. I was just about crawling up and down. now my thighs, knees and heels hurt going up and down. my shoulders are killing me. the burning and aching pain have me crying sometimes. The twitching is not so bad and no tremors right now. the mornings that it does bother me makes it hard to drive if I have to go out but most days I stay in. I am really lazy and want to do nothing but lay in the bed all day and watch tv. I am back to not sleeping at night and now I am falling to sleep much later in the mornings like after 8am sometimes and I have not been waking up until after 3pm.

it hurts when I first get up to walk but I have not been falling yet. I go Monday to see my new Neuro for the first time and I know I will have to do everything all over again so I know I will be just letting his talking go in one ear and out the other until he catches up.

I know I am not as bad as a lot of you but when I was at my worst and I can remember that this feels so good right now.

So how is your dispicable, worm crawling, dodo eating, party pooping, snotty, smelly, creeping, crawly, carpy, cantakerous, ugly, obnoxous disease treating you these days?

Same old... I'm not particularly fond of MS. Pain has gotten a little worse and I now understand how difficult it can be to walk due to, I guess, the numbness. It's getting harder for me. Oh well. coming up on 25 years since my MS dx.

Just getting rid of a bad staph infection in my leg. 60 days on antibiotics!

Busy schedule coming up. T-giving in Michigan (MIL b-day), Caribbean cruise in mid-December for 25th wedding anniversary, Tennessee for x-mas (mother).

And I'll be starting a clinical trial for a drug to reduce MS related neuropathic pain...

Still working. We had a supply ship dock at the space station this morning and have a debris avoidance maneuver this afternoon. Then an EVA (space walk) tomorrow.

When the time comes, I'm gonna get a Quantum 6000Z with the optional high speed motor package and be just like Wheelchair Kamikazi!

Tom

When the time comes, I'm gonna get a Quantum 6000Z with the optional high speed motor package and be just like Wheelchair Kamikazi!



Tom. Start saving now!

My insurance covered about 1/3rd of chair cost, but I would not have a chair without tilt control. Buying a chair first time, well now I can look back and see what I didn't know. I really don't have pain or tingling. Just can't walk. MS is so weird. Cognitively seem OK for my age.

Tom, isn't my discription of MS right on? I mean it's not medical but.....

Sorry about your pain, hope that trial stuff works for you. Sounds like you have your Holidays and stuff all planned out. I loved the old days when my Mother, the queen, had it planned for all of us. All we had to do was show up, loaded with presents..

I hope ur feeling better soon.