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Old 10-26-2012, 09:51 PM #21
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Hi KB. Welcome home.. So sorry about all of your stress and DH's illness. It doesn't just rain, sometimes it pours. I'm praying that rainbow and a little peace reaches you soon.
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Old 10-27-2012, 12:49 PM #22
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Aww Judy-is this reversible with meds/diet? Prayers for you my dear-try to stay strong-we need ya!!

I can't keep my mind from going 240...my DIL has hijacked all of the planning of DDs baby shower-which is probably a good thing because I couldn't organize my thoughts well at all...cog fog is back big time. Something else is possibly very bad for one of my children as well-can't disclose-but it has me tied up in knots.

I can't seem to handle any stressful issues again...my brain is back to its MS state, and I too want to go off on an ice floe
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Old 10-29-2012, 04:26 PM #23
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Went through hell last week with the whole side of my face aching like crazy all the way to the top of my skull like I never felt before in my life. Have had dizziness which sucks. Couldn't drive and had to be driven.

On a new assortment of dope for this and see how it goes.

Also had tingling and leg was randomly "jumping"

Guess my luck is ******* over and currently trying to find a ******* cure for this ********.

yah, it sucked, my worst of it so far. That skull pain was the worst....I was going crazy for about three days.

Last edited by Chemar; 10-29-2012 at 05:17 PM. Reason: NT's Language Guidelines
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Old 10-29-2012, 04:29 PM #24
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Also I think I'm getting some cognitive issues again as I was at the store the other day and trying to talk to the person there and really had to concentrate on what I was saying to the point she asked if I was ok.

it was embarrassing, but I didn't mention MS to her. Just said I was feeling tired.
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Old 10-29-2012, 09:31 PM #25
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((((((EricP)))))))
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Old 10-31-2012, 02:26 AM #26
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Please feel better everyone and I mean in mind.

For a few months now I have been feeling much better. before that everything at once was going on in my body, I had to write on my list more than once a day sometimes now it is where I can keep up with the things that are happening.

I notice that my right index finger is bent at the top joint. when it happen I have no idea, it is crooked as can be. it don't hurt but all the others are straight so it can really be seen. still get sharp pains every now and again throughout my arms and hands and now I have pockets of fluid in the joints the last one I notice yesterday is in my elbow the left one but not the right one that I lean on all the time.

I just moved from Philadelphia PA to Clarkston Ga and I have stairs now to go up and down and the first few weeks were hell. I was just about crawling up and down. now my thighs, knees and heels hurt going up and down. my shoulders are killing me. the burning and aching pain have me crying sometimes. The twitching is not so bad and no tremors right now. the mornings that it does bother me makes it hard to drive if I have to go out but most days I stay in. I am really lazy and want to do nothing but lay in the bed all day and watch tv. I am back to not sleeping at night and now I am falling to sleep much later in the mornings like after 8am sometimes and I have not been waking up until after 3pm.

it hurts when I first get up to walk but I have not been falling yet. I go Monday to see my new Neuro for the first time and I know I will have to do everything all over again so I know I will be just letting his talking go in one ear and out the other until he catches up.

I know I am not as bad as a lot of you but when I was at my worst and I can remember that this feels so good right now.

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Old 10-31-2012, 10:13 AM #27
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So how is your dispicable, worm crawling, dodo eating, party pooping, snotty, smelly, creeping, crawly, carpy, cantakerous, ugly, obnoxous disease treating you these days?

Same old... I'm not particularly fond of MS. Pain has gotten a little worse and I now understand how difficult it can be to walk due to, I guess, the numbness. It's getting harder for me. Oh well. coming up on 25 years since my MS dx.

Just getting rid of a bad staph infection in my leg. 60 days on antibiotics!

Busy schedule coming up. T-giving in Michigan (MIL b-day), Caribbean cruise in mid-December for 25th wedding anniversary, Tennessee for x-mas (mother).

And I'll be starting a clinical trial for a drug to reduce MS related neuropathic pain...

Still working. We had a supply ship dock at the space station this morning and have a debris avoidance maneuver this afternoon. Then an EVA (space walk) tomorrow.

When the time comes, I'm gonna get a Quantum 6000Z with the optional high speed motor package and be just like Wheelchair Kamikazi!

Tom
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Old 10-31-2012, 10:58 AM #28
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When the time comes, I'm gonna get a Quantum 6000Z with the optional high speed motor package and be just like Wheelchair Kamikazi!



Tom. Start saving now!

My insurance covered about 1/3rd of chair cost, but I would not have a chair without tilt control. Buying a chair first time, well now I can look back and see what I didn't know. I really don't have pain or tingling. Just can't walk. MS is so weird. Cognitively seem OK for my age.
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Old 10-31-2012, 12:18 PM #29
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Tom, isn't my discription of MS right on? I mean it's not medical but.....

Sorry about your pain, hope that trial stuff works for you. Sounds like you have your Holidays and stuff all planned out. I loved the old days when my Mother, the queen, had it planned for all of us. All we had to do was show up, loaded with presents..

I hope ur feeling better soon.
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Old 11-01-2012, 08:01 PM #30
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I was a nervous wreck when Sandy was going thru NJ, NY because of DD living there. Then good news, they were fine and safe.

Now I get a call my DS and DDIL were in a vehicle accident. His SUV was
was rammed dead center by a teen driving a car, trying to get across the hwy. before my son got close to him DS had the right of way.

While trying to avoid contact DS's SUV wheel went off the straight of road, so when the teen hit him the SUV rolled over. My DDIL was thrown from vehicle, she has a broken ankle, servere contusion of her left shoulder, plus all other brusies. DS's face cut up in a few places, he is hurting but was so worried about his wife he refused treatment. He just had the ATV accident in May where he broke 6 ribs.

So right now my nerves are jumping around like beans and this is not helping the UGLY CREATURE THAT HAS TAKEN OVER MY BODY.

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