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Old 10-17-2012, 12:39 PM #1
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Default I feel like I need a padded room

Last week I had a horrible allergic reaction to my copaxone shot. Told neuro Im not taking it anymore, he agreed. Said its not worth it and appearantly not working for me. He won't rx LDN for me, as he says LDN won't stop the MS. I said, "Well no &!#$%, NOTHING is going to stop the MS!" He wants to talk to me about BG-12 and Augebie (sp???). I said I didnt want to be on anymore dmd's and I was told "you have to be on a dmd". My response, "The only things in life I HAVE to do is stay white and die!" He said,"Keep an open mind". Ok, mind open. Now I seem to have developed a UTI. More pills! I have a mini pharmacy going on already between the maintenance meds, vitamins, etc, now Ive got antibiotics too! So between popping pills every few hours, and all the break thru pain from spasms, not to mention the nerve pain which neuro wont rx me anything to help control that, the drop foot(which I cant get an AFO because I cant afford it) Im going crazy!! Ive had MS for a long time, but it really attacked hard last year for the first time and it wont let go! It wont stop. Im frustrated, angry, scared, panicked, etc. The song "They're coming to take me away ha ha he he" keeps running thru my head. How true it feels sometimes
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 10-17-2012, 01:35 PM #2
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I am very sorry to hear this KL. I hope things get better for you- body and mind & spirit.

ANN
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Old 10-17-2012, 01:47 PM #3
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AWW KL, So sorry. Sometimes it seems like the Docs are not on our side and that's right where they should be.

Ask your Doc if he thinks the LDN will do you any harm, if not, may you try it to see if it gives you some relief from your symptoms? You don't expect it to cure you!!

You can still try his dam DMDs, but you want to try this.
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Old 10-17-2012, 10:24 PM #4
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Try it (LDN). You don't have opiates for pain, anyway, do you? So maybe it would help. I have not tried it. Doctors ridicule it here but I would try it if my situation was less complex. You seem at the end of your wits on this. The LDN is not expensive, I have heard. Blessings to you, poor KittyLady. Love you and praying Mariel
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