[spokz]

hello...

My husband and I have decided to start trying for a family

I was dx in Aug 2012 and on betaferon injections since

Two separate Neuros have advised its safe to stay on betaferon whilst conceiving and whilst pregnant.

Has anyone had any experience with this or know of someone who has? Ive read a few case studies where 300 odd women were tested and no signs of abnormal results that wouldnt occur in women without ms?

any help would be great

[ANNagain]

Welcome to NT, Spokz.

I am childless- not on purpose- but received no treatment w DMDs until I was in my 40's. I have had MS since at least 21.

I'm sure there are some here that will be able to offer their experience.

I wish you a happy pregnancy and a healthy baby!
ANN

[spokz]

thanks we are very excited however nervous at the same time and want to make sure we make the best choices all round

[ANNagain]

I understand that during the pregnancy, PWMS feel very well.

Have you talked to your MS Specialist? You might not need Beta while pregnant.
ANN

[SallyC]

My Daughter chose to stop ALL meds during pregnancy...taking no chance. As Ann said you won't need it during pregnancy, you can start again after breast feeding. Usually hormones take over and your MS goes away for awhile.

Welcome to our group and Happy Baby..

[spokz]

thanks everyone

My neuro and the neuro I seen at my local hospital here were both happy for me to stay on it, however the drug company and generally everyone ive spoken to has said not to...

a couple of studies have shown use during pregnancy may result in lower birth weight however no developmental issues are shown...

im seeing a gyno and ob today to seek a new opinion

[EddieF]

Howdy. The good news is MS symptoms go away (so i've heard more then once) during pregnancy. I've asked every girl I know to get progesterone & the 3 estrogens levels checked pre, during & post pregnancy but they all declined. I hope you'll be the one to finally provide the data i've been after.
Best of luck!

[NurseNancy]

i was just about to say to check with an OB or high risk OB about the med.
MS has a tendency to retreat during pregnancy so it may be a ok time for you to stop. but i don't know the answer to your Q.

please let us know. i'm curious.
happy baby making.

[spokz]

seen an obgyn who tells me shes had several patients on betaferon during pregnancy, I also have the choice of weaning off while pregnant.
she explained no more risk level than normal pregnancy, generally lower birth weight however no developmental issues
recommended bottle feeding so I can rest when i need to and get back on my treatment after giving birth.

she also mentioned I can elect for a c section as my ms could be flared from going through 40 hours of labour plus ms patients generally exhausted after small amount of activity

YAY! she also looked and me and freakishly said id be pregnant by January and shed see me again then as if she had psychic abilities

[NurseNancy]

ok, great. now let's start thinking of names!