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Old 01-02-2013, 01:46 PM #1
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Default Another relapse

Im having another relapse . Im having all my normal signals. Severe dizziness, more unstability in my walking, low back pain (pretty severe), HUG, heavy legs, UGH!!! My dd was crying last night telling me she thinks Im getting worse and not better. She's terrified I'll never get better and just continue to progress. How do I comfort her, when Im terrified of the same thing?
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 01-02-2013, 02:11 PM #2
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Awww, I'm so sorry KL. The holidays were just too much for your stress level. Happens to the best of us.

Tell your DD that this is just a flare and temporary. Things will be better and even if your MS gets a little worse, you will always be there for her..

Feel better soon.
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Old 01-02-2013, 04:51 PM #3
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Sorry, KL.

It's a hard situation to go thru and there is no "knowing" what is to come, what is to be. Just like other non-MS peeps. I don't know how old DD is or what it might be appropriate to share w her. If she is a grown daughter, can you share your fear w her? Face it together?

If she is a child, I just don't know.

It is common to have flares this time of year. The MS Clinic nurses call the treatment, "Christmas Steroids."

I hope things get better all around for you.
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Old 01-02-2013, 09:53 PM #4
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Thanx Sally and Ann. DD is a grown woman, married with 2 babies. She scares so easy with me because we live about 500 miles apart. We will be moving back home in about a year so maybe when we live closer and she can come see me, she wont be so scared.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 01-10-2013, 08:36 AM #5
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that stinks. get better.
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Old 01-10-2013, 03:47 PM #6
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KittyLady, I'm so sorry about your relapse. It sounds miserable, and I hope you get to feeling better soon.

I agree that this seems to be the time of year for relapses; I've been having a bad couple of weeks myself. I wonder if it has to do with getting past the stress of the holidays? Our bodies relax a bit after all the extras we've been doing, and we may be more vulnerable to flares...

As for your daughter, she sounds very caring and devoted to you. Perhaps once she's living closer, she'll be able to see you more on a day-to-day basis and will have a better understanding of your relapses and remissions. It's being so far away from you that makes her so uneasy because she can't see how your disease routinely acts.

Once she's with you and sees how your MS flares and remits, she will know more what to expect. It's the not knowing, and the distance, that makes things worse for her, I'm sure...

Feel better, KL!
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Old 01-13-2013, 07:31 AM #7
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Hi Kitty

Just checking in on you - I haven't been on the board for a few days, and I was wondering how things are gong for you? It sounded like a nasy flare.

Hugs

Lyn
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