NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   What's Your EDSS Number? (https://www.neurotalk.org/multiple-sclerosis/182397-whats-edss.html)

TheSleeper 01-15-2013 09:30 AM

Quote:

Originally Posted by doydie (Post 947600)
It looks like I am a 5. How far of a distance is 100 meters?

A little over 100 yards.

Myself? some where above 6.5, LOL I am not liberal enough to call what I do walking. A manual wheelchair is beyond me, although I stagger around the house at time for short periods. The quad cane, walls and counters are my friends.

Kitty 01-15-2013 09:54 AM

Quote:

Originally Posted by TheSleeper (Post 947669)
The quad cane, walls and counters are my friends.

Me, too! I think I seem worse when I go out somewhere because my usual "props" are gone....the walls, furniture, counters, predictable terrain. At least that's what I'm telling myself......:o

Sparky10 01-15-2013 10:47 AM

Never been tested or had a test offered or suggested. Been on SS Disability since '04, I think.

I would think the results would change from day to day. For me, even hour to hour depending on what activity I just did.

barb02 01-15-2013 11:45 AM

I have never been given a number either by my neurologist. Mine would also depend on the time of day. I am guessing I am somewhere betwen 4.5 and 5.5

Kitty 01-15-2013 11:52 AM

I'm assuming that the doctor probably looks at your overall condition and makes a determination based on several months of data.....not just that particular day he gives you the number. But, I'm really not sure so you'd have to ask the Neuro how it's determined. I saw mine on a copy of my medical records. Otherwise I'd not have known what mine was either.

SallyC 01-15-2013 02:40 PM

My old neuro never gave me one either, but I've rated myself from time to time. I watched mine scurry up the ladder, in the last 20 years. Before my bad attack in 1993, I was about a 2.

So how would you gals and guys rate yourself? Who would know better than you?:)

Erika 01-15-2013 04:30 PM

Most of the time I'm a 3.5-4.0; but when in a bad flare, it has gone up to a 6.0.

With love, Erika

TheSleeper 01-15-2013 06:06 PM

I have never been given an official number, on my first visit to a neuro in late 2004 one of the first things he said to me was " you don`t walk very well " LOL did you think I just came to visit? My PCP didn`t think so either and referred me to you.

On the bright side? he said I needed to be in a wheelchair (electric) and started the paperwork, and it only took two years to finally get everything done right so I could get one. LOL

Debbie D 01-15-2013 06:13 PM

I don't think my neuro wants to put that number in my head...but one thing I've noticed--during my exams, he no longer makes me perform the worst test for me. He used to have me stand with feet together, arms extended, then close my eyes. I would immediately fall into his arms.
Since I have both bladder & bowel problems, as well as dragging foot & cognitive issues serious enough that prevent me from working, I'm not sure but I would suppose I'd be around a 3 or 4...but I can't really figure it out...numbers:rolleyes:

marion06095 01-15-2013 07:05 PM

6.5 for me.


All times are GMT -5. The time now is 05:46 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.