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Old 02-02-2013, 05:52 PM #1
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Confused I hate this disease.............

It's not fair at all.....I hate it.....why?.....Rinse and repeat. A question to those dealing with spms -- even though we don't have actual exacerbations, do you have times when existing problems are much worse?

My all ready spastic legs have turned into whole spastic body. It's almost impossible for me to sit up straight and lean forward (to pick up my little dog). Had the spastic bladder thing happen again and had to have my catheter removed. You know what that means and I'm unable to reach my pants to change. Thankfully I do have an aide coming in one hour a day just for that purpose....changing, bathing, etc.....but in-between I'm stuck. Now the Home Health Agency is suggesting a personal care home. NOOOO!

The pain is worse, headache too, soooo stiff....you get the picture. So, do you think this could be a type of flare? I sure hope it is and will go away soon. Thanks for your thoughts.
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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