Hello. I am new to this forum. I do not know if I have MS. First, I am not in the typical age group, I am 63. Symptoms started 2 years ago with continous head aches, often unable to sleep due to the same. Had 2 episodes of ceiling spinning and vertigo. Had 2 episodes of visual scotome.
I also had had terrible leg spasm of both legs almost every night for months. Went to eye doctor after 2-3 months. I had MRI, it showed a few things: Demyelinating lesions suspecting possible MS. Cerebral aneurysm, and a silent stroke. So, first priority, I had a endovascular embolization repair of the aneurysm right away. ( I was so lucky this was found before rupturing, I almost think it was a miracle that I had the headaches)
I have sincebeen feeling very fatigued in the last 2 years. Have some balance problems some times. For the last 1 1/2 year, I have been feeling tremours/vibrating feeling inside in afternoon. I have developed terrible burning pain all over, this getting much worse for last 6 months. I have had pins and needles in arms( but it could also be due to a herniated cervical disc. Now I have felt heavyness in legs sometimes after the burning pain has been on for a while For the last 6 months I have had more and more numbness in feet, mostly left, and also hands. I have a negative EMG. The Rheumotologist says it could be small fiber neuropathy.
I feel a shakyness/unsteady feeling sometimes. It feels like the ground I am standing on is shaking. This happens often when there is a lot on noyce and activity around me. I have also felt it sitting on a sofa or lying in bed, it feels like it is shaking under me. I have been seen by neurologists, had repeat MRI with contrast both of brain and spine, to check for new lesions, but there has been no new lesions. I have been checked for Sjogrens, and have had all the lupus blood tests. All negative. I hav been diagnosed with leucocytoclastic vasculitis, with skin lesions on legs.
But the terrible tremor feeling especially when I get tires, continous. And it seems to bee worse now. It seems to be worse with the neuropathy pain. I have not had a spinal tap yet, due to being on 2 blood thinners.
Could I have MS? I feel that I must have some CNS involvement due to the symptoms. Or I could be having systemic vasculitis? I am going to have a biopsy of lesions in the bronchi due to findings on bronchoscopy
I apreciate any suggestions
thanks