Natalie,

So right about the Levaquin. I took it for 2 weeks after bladder surgery a few years ago. Didn't realize the problem with this antibiotic. About a week after surgery (while on Levaquin) feet,ankles, legs began to swell. The edema was terrible and the PN went out of sight. When I mentioned the swelling problems to surgeon; all he could say was "well you are getting older". Like; in less than two weeks, I got that much older. I still have the edema (take med daily for it) and the PN just keeps getting worse. I only wish I had been aware about Levaquin at the time.

Gerry

Your comments reminded me of the 2 worst things a doctor can say to someone regarding a health problem:

1. You are just getting older
2. It's all in your mind/it's psychological

A lot of this is lazy doctoring. Also, I'm convinced WAY more women get told the cause of their disease is psychological. This is a remnant of gender bias. Anyhow, I've learned to be very assertive with doctors about my needs and what is going on in my body. Sometimes the doctors don't respond well initially because they think their authority is being challenged but they usually come around.

People should remember that each individual knows their own body the best. If only doctors were better listeners. I can't tell you how many times I have had to say "Look, I know my own body very well and X is what is going on." There have been times when I'm flat out right despite what the doctor says!

Wow, three tendon ruptures? My goodness. You poor thing.
I addressed the Rheumy on this and she felt because I didnt have a ruptured tendon, it wasnt related. But Ive felt like crap since I took those meds.
I do hope you are feeling better.

I have things going on that the docs cant see without imaging and its hard to get them to understand that something is up.
I see the neurologist next week. I hope I get some answers.
My foot is still numb. My joints, especially the knees are sore as hell.
Every day. Its taking its toll.

Hi sunflower
 

I can't say that the medications did it, those ruptures, but I think there is a connection. I had NO injury or fall. For about 6 years, my walking was terrible.
I limped and could not walk on sand at all. My former foot doc. didn't dx it right. He didn't do an MRI, which to this day really makes me angry:mad: Two docs wanted to do tendon transfers, three incisions in the ankle. An ortho said No and so did my PCP, as I have PN.
Last year it started to get better. I have no explaination on why. Evidently I did heal without intervention. It just hurt for many years.
Somehow doctors fail us, in adequately informing us of possible dangers. B12 did more for me than all those doctors did. I got on the vitamin bandwagon. I read alot of posts here about that also. After about 1 year on these vitamines is when I started to get better.
I hope you are OK this day. The more information we get, the better we do as patients. Take care. ginnie:grouphug:

b12 deficiency reconsideration
 

Many of your symptoms so sound like a b12 deficiency. Althought you have had your b12 levels checked your body must still be able to reduce b12 to methylcobalamin which involves additional organs, coenzymes, etc. Methylcobalimin is available as an injection and is sold with the idea in mind that is already in the form your body can use.
You could have your b12 levels checked and they could appear normal or high as your body may have an inability to convert it to methylcobalamin. Did you have your methylcobalamin levels checked. Also how about your hair and nails. MS, the demylination of your myelin sheath would not affect the health of your hair and nails(to my knowledge, please correct me if I am wrong) however a b vitamin deficiency would. Both would present in fog brain.