I haven't been this bad before. This is the worst it's been so far.

it really really really <expletive> sucks!

So sorry you're feeling so horrible, Erin. This monster pushes our feelings and emotions all over the place. It's good you got to talk with your regular neuro....at least he knows fatigue is part of MS!!!! Try not to panic and hopefully in time, this too shall pass....

I don't blame you for being afraid, so would I. I
remember my scary exacerbation of 1992/3. But
even it passed and I felt better again......So, hang in
there.

PT and OT also are important in the scheme of healing.
Be sure to tell your Physiatrist that you need to rest
between sessions, because of MS fatigue.

I hope you'll feel better soon. I feel blessed that I haven't flared in so long. Knock on wood.

Do steroids help you? I always got worse when I took them. I hope they can do something soon to help. It doesn't help that your mom has that attitude either I'm sure.

I had IV steroids last summer when my hands went numb, and the steroids made me sick. If I try them again, I'm going for the cheap $5 bottle of oral steroids rather than the expensive needle and plastic tube in the arm variety.

If it makes me sick again, I don't want to pay a billion dollars for it.

I am really not feeling good today. I want to take a shower, but there is just no energy to do it. I want to go get my hair cut because my hair is driving me insane, but I don't have the energy to sit in a car to drive for twenty minutes to the guy who's been cutting my hair since I was 10yrs old. I may end up going to the place that cuts my mom's hair. Not sure I want to do that because I don't know if I want anyone touching me, and I don't want to end up looking like my mom and my sister. (sister uses the same place). Plus, I don't think I have the energy to walk in there.

Things are just really uncomfortable. I feel like I can barely move. I'm so tired. I really want to take that shower, but I'm afraid I'll fall asleep on the shower stool and end up on the floor or something. Just don't have the energy. I might attempt using our walk-in bathtub, but it takes forever to do that too, because you have to get in and sit down, and then close the tub door and wait for the thing to fill up. At least sitting in a tub full of water, I wouldn't have to hose everything off to get clean. I could just sit there and wash my hair.

this just sucks so <expletive expletive expletive> much that I don't know how much longer I can deal with this without having a complete meltdown.

My best friend doesn't get it. I mentioned on facebook that I wasn't feeling good and she said I need to get up and get out and go do something....umm...yeah, I don't think so. She basically said the same thing last summer when the steroids were making me so sick I couldn't walk thru a very small walgreens without wanting to lay down in aisle three and die.

I hope this gets better soon, Erin.

ANN

Erin, you take 1000mcg B12, 2000-8000 iu's D, (Iron if needed)??? Fish oil?
Change diet past week?

Steroids never made me sick. I embrace them & do more exercise then I ever could when it's steroid time. 60 laps vs 30 laps one time in pool.

Erin: My walking is really bad, but I've had spells like you have now that have gotten better with time. This may be temporary. There may be something in your system that is causing it.

As far as people understanding, in my experience no one can understand unless they have MS. I think the problem is, is that we all look too good on the outside. I wish everyone I knew could spend 24 hours in my body. At least we can vent here. But there is no excuse for your mom's behavior, and you should not have to put up with that.

I hope this passes and you feel better soon. Nora

well, my mom kind of gets somewhat of a pass on her behavior because she had a head injury when she was 17 that made her a bit....difficult to get along with. My aunt said my mom was a bit of a <bad word that starts with "b"> when they were kids, but that after the head injury my mom got a little worse.

We're seeing as my mom gets older, that some of the weird things that she does are getting kind of worse. I think the behavior she's doing right now tho, with tossing things across the room, throwing her eyeglasses on the floor, might have something to do with the West Nile virus she had over the summer, and the medications she's still having to take from that (anti-seizure meds. One of the side effects of one of the drugs is uncontrollable rages. Wish they'd take her off of that stuff. Not that she wasn't already having uncontrollable rages before that, they've just gotten worse)

I think I feel worse every day. I'm probably not going to PT tomorrow. Think I'll go to my doctor's office tomorrow if I can get an appointment. I think this flare is the flare that I've been afraid of having ever since I got diagnosed.

About to attempt a shower. I can barely walk across my room right now, so it might be a little entertaining to see me attempt a shower in a little bit. (when I say "entertaining", I mean "sad and pathetic")

Oh, and to the person who asked if I take any supplements. Nope. Only thing I take is baclofen and the occasional valium.

and now I'm going to crawl into my shower and at least attempt to wash my hair.

I managed to successfully wash my hair. So very glad that we remodeled my bathroom when we did a couple of years ago. That old shower would have been useless to me the way I am now. I still wish I had more grab bars. (I have 3 in the shower, and two right outside of the shower)