I'm lovin this video...!!

http://www.youtube.com/watch?v=7cORA...E36EC99CB3302B


What I mean is...that woman in the video has MS and she is still riding...she's an older girl too.

Several videos of young and older people riding bikes with MS... Makes me feel good and I must stop worrying my legs are going to quit tomorrow! lol.

Chin up, Eric...everyone is different, as you have read...
I got dxd when I was53 after several years of trying to find out why my toes were numb, then why I was walking weird, double vision, vertigo, different things at different times. When legs locked, voila MS dx...

I have never really had what others call an exacerbation...just things popping up more and more and then becoming permanent. My right foot drags a bit, and I have a lot of painful spasticity.

So just keep on moving...if you can't jog, walk. If it's difficult to walk, swim. Don't give up. Keep active...it's what keeps us going.

That's MS in a nutshell.

I would tell you my own timeline but it wouldn't help because I'm me and you're you. Sure, it might help satisfy your curiosity but honestly, I can't remember specifics. Suffice it to say I was diagnosed in '00, I will be 54 in '13, and I hike the wooded and tangled steep hills near my house for over an hour, and will be quite physically and literally wadded up and dragging a leg by the time I get home. However, I can slowly jog a half mile and not be in too bad of shape.

Anything can happen.

That is impressive. Do you worry about anything happening while you're hiking up there? You go alone? I wouldn't think so.

It's awesome to hear everyone is pretty well active. Sure glad I brought this up, because it makes me feel better

Eric, the thought of falling or hurting myself somehow is always with me. I often fall in the woods; so far the worst has been a badly sprained ring finger. I carry my cell phone, and try to stay in the area that I tell my BF I'm going. I use trekking poles for balance and a little support. It's either this or stay home! And I'm going to remain active as long as I can.

I carry my cell phone all the time no matter what and I recently got a touch pad type and have all the emrgencies numbers on speedial..... All I have to do is hit the red-cross icon and it calls 911. I really don't need it yet I Guess, but it's a good idea and why not? Just in case I fall off the bike and go into some MS induced shock or whatever....it's there.

I'm happy you still go out in the woods... I've decided I'm not going to get depressed and wither away in some fat chair... Still feel good(minus the last two months) and the summer is almost here....so screw it....I'll be riding as much as possible.

I started having some walking issues as soon as I got sick, long before an official DX. My legs always felt heavy, no spring in my step, I went from being the first across the parking lot at work to tail end Charlie.

For me though this whole adventure began with a bout of acute mononucleosis, with in a year and a half I was walking like a drunk. I can still walk, if you use that term very loosely.

I need a cane, walls, counters, or anything else available for support.

How does it hit that hard? Right off the start you're where many of us will take years to get too. What does this mean for the future? Is it progressing any further and is it stable right now?

Sorry if my questions are invasive...I'm, just trying to learn all I can about this BS.

Eric, first off I am not bothered at all by questions. I was dx'ed with primary progressive as soon as got a dx, so I am not in the majority group.

At times I feel that the news and even the MS organizations do a disservice by showing actors, politicians wives, ect. that may have a milder form, or a lot of cash to handle their situation? Perhaps if they focused more on those that don't people would have a better grasp of the disease?

I was 52 when it hit, I was able to retire, and had really done a lot of things of personal interest to me in life, so it is just a new source of constant adjustment for me. One of the many learning experiences in life I could have done without, but there were no guarantees at birth?

Chit happens? so it seems does MS. I was never much of a complainer, whiner, I just take things as they come and deal with them, or at least try to get some laughs from them!

I diagnosed myself thru my own research into the name of an illness the doctors seemed unable to get labeled correctly. It was confirmed by a specialist after I got rid of the quacks! A lot of the things in the differential diagnosis seemed a lot worse, and I am still around to have my laughs!

It was deemed a pretty aggressive onset and the progression continues, oh no! I'm going to die? Heck we all do sooner or later, I want to go out laughing!

I agree with you 100% Very rarely do I run onto any of the more aggressive MS people that have MS. LOL what I mean is.... the more aggressive forms of MS...You always see RRMS. So I know where yerr coming from and can see how that sucks for you.

I just cannot believe how damn random and .......... unforgiving MS is. I mean for you it just hits you full force and no breaks...I cannot or do not want to know what it is like. I got the DX of RRMS, but after years of brushing off symtoms and just other things. It took a dizzy and fallling spell plus some incontinence issues.....to get me into the ER thus the start of it all. I still feel good though minus two months ago when I got sick and everything went to hell I went fo ra good 10 mile bicycle ride today in 50 degree weather so that felt good....real good.

My walking is ok....I noticed I have a bit of trouble in a sprint....I cannot do it actually lol, but I can do a normal jog thus far.

I guess we all just have to keep ourselves ..... I don't know..... just keep trying to do what we always do.

Thanks fo rthe answer, it is appreaciated and I do wish you, for what it's worth, to remain as well as you can be.