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Old 05-12-2013, 11:03 PM #11
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Default re tecfidera costs etc.

I just joined this forum to find out more about tecfidera and am happy I did. thank you all for your info.

I will be starting it as soon as the company contacts me, having just done the blood work. copaxone along with novantrone kept me from having ANY new lesions for over 8 years (since my Dx) then suddenly the copaxone quit working and I presented with 12 new lesions. thus the switch. (I tried interferons just long enough to find my system is intolerant of them.)

my ms neuro just told me it will be cheaper than copaxone. tho I read online that it is twice as much. (?) she also said, tho it was developed to lessen relapses, it will also slow progression - in all forms of ms. I am confident that she is well informed, not that I won't continue to study this online, but I have never found her to be misinformed on anything yet.

I will be taking tecfidera concurrently with LDN which I've been on for about 16 months and take to help with ms fatigue as my insurance won't cover what I need for it. the LDN helps with it a little bit.

thanks again, kate
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Old 05-13-2013, 11:56 PM #12
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Welcome to Neurotalk, Kate! That's funny...my neuro's nurse's name is Kate.
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Old 05-14-2013, 09:36 AM #13
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Hi Kate, Welcome!!!
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Old 05-14-2013, 10:42 AM #14
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My Neuro really wants me to try this drug. I have to go back to see him in June so I will ask him about starting the process. I'm nervous about it but more nervous at becoming more disabled so I'll give it a try. It's interesting to read what folks who have been taking it for a while have to say.
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Old 05-14-2013, 12:08 PM #15
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What do they say, mostly, Kelly?

Good luck with this.
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Old 05-14-2013, 01:51 PM #16
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Quote:
Originally Posted by SallyC View Post
What do they say, mostly, Kelly?
Just what I've read here from the folks who've tried it.

I'm to the point that I'm ready to try something......anything. The shots didn't help me. There's got to be something else.
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