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SallyC 04-23-2013 09:24 PM

Quote:

Originally Posted by skywalker1988 (Post 977819)
that doesn't help

OK then, sorry.

doydie 04-23-2013 11:22 PM

:grouphug:

skywalker1988 04-23-2013 11:31 PM

I need answers, not a therapy session. I went to a therapy session three times, where all I did was sat and talked for an hour with no feedback. IF this forum is going to be the same thing, then I should leave and find somewhere else.

ewizabeth 04-24-2013 12:05 AM

All we can do here is offer moral support and listen and try to offer advice. I wish we could do more but what more could we possibly do? I can totally empathize with what you are going through. If I were your parent I could personally take charge, but even then I don't know how much I could do.

You have to go through the system and wait for all of the steps just like all of us had to do. We can't make it go any faster for you, as much as we would like to help you. Try not to stress out if you can. :hug:

Sparky10 04-25-2013 09:33 AM

Eric, I hope your anger with us is from frustration. We aren't doctors, and don't play doctor. Maybe you are looking for useful suggestions rather than commiseration? You are getting suggestions, but here's another ~ since you have no money or insurance how about asking for a referral to a teaching hospital, a University Medical Center? They usually offer big discounts.

For example, when I was in the diagnosis process I was in your situation; no money and no insurance. The one neuro I saw (and paid full fare to see) referred me to a UMC that was about 2 hours away. I applied for received a 90% discount.

Sounds like you need a neuro who will act on your problem, not wait. Might as well be one you might can afford.

Snoopy 04-25-2013 09:45 AM

Quote:

Originally Posted by skywalker1988 (Post 977838)
I need answers, not a therapy session. I went to a therapy session three times, where all I did was sat and talked for an hour with no feedback. IF this forum is going to be the same thing, then I should leave and find somewhere else.

I'm not really sure what you expect from anyone on this forum or any other. We are simply a group of people who are trying to deal and cope with the same disease.

No one here is a Doctor or even claiming to be a Doctor. It would be remiss of anyone to start handing out medical advice since your symptoms and the management of MS is between you and your Neurologist. If you are not happy with your Neurologist then please look for a new one.

We can offer suggestions, which may or may not help, but if you don't want to hear or listen I am not sure what the point is :confused:

Snoopy 04-25-2013 10:48 AM

Pain issues are very common in MS:
http://www.nationalmssociety.org/abo...ain/index.aspx

Managing MS pain:
http://www.nationalmssociety.org/liv...ain/index.aspx

If your parent(s) have healthcare you can still be covered under their health insurance until you are 26 years old:

http://www.dol.gov/ebsa/faqs/faq-dependentcoverage.html

http://www.hhs.gov/news/press/2012pr...20120619b.html

NurseNancy 04-25-2013 11:06 AM

if you call 1-800-FIGHT MS you will be able to find your local MS Society.
they might be able to give you referral info for someone in your financial circumstances.

try to deal with 1 thing and 1 day at a time while still being your own best
advocate. don't give up. ask Q's of lots of people and you might be steered towards some help. it's called networking.

lots of us may have suggestions. most of them might not work out, but we'll do our best to help you.

Sparky10 04-26-2013 02:15 PM

Just realized I called you the wrong name. I'm sorry! :o

GladysD 04-29-2013 04:02 PM

Quote:

Originally Posted by Snoopy (Post 978261)
Pain issues are very common in MS:
http://www.nationalmssociety.org/abo...ain/index.aspx

Managing MS pain:
http://www.nationalmssociety.org/liv...ain/index.aspx

If your parent(s) have healthcare you can still be covered under their health insurance until you are 26 years old:

http://www.dol.gov/ebsa/faqs/faq-dependentcoverage.html

http://www.hhs.gov/news/press/2012pr...20120619b.html

Is SkyWalker in Canada? If, so, what other links to financial assistance for Canadian MSers, are available?

I have an MS issues of my own, that doesn't have any answers. Sucks, it's fainting/passing out/seeing stars in a hot shower. My bloodwork, shows I am healthy...UGH!!! Seriously, there's jack-squat out there. Grrrrr....

And group therapy...yeah, I personally, keep my therapy talk to psyche central, but yeah....I hear ya...not much out there. Call the NURSES!! Maybe they can give answers to this terrible disease!!


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