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04-24-2013, 06:32 PM | #1 | ||
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Senior Member
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The New England Journal of Medicine reports 2 cases of PML in the European Psoriasis drug that is the main ingredient in Tecfidera (BG-12).
Read here: http://www.foxbusiness.com/news/2013...ain-infection/ And here at Medline: http://www.medscape.com/viewarticle/803100 ANN Last edited by ANNagain; 04-25-2013 at 09:56 AM. |
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04-24-2013, 07:43 PM | #2 | |||
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Member
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I started the paperwork ball rolling (actually running not rolling).. today!
I can't wait to give it a go. Hopefully mid next week! EDIT - just tried your links for 1st time and they're gone. Hopefully it was b.s. like flashcrash. Either way, i'm in. |
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04-24-2013, 10:10 PM | #3 | |||
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In Remembrance
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The PML risk is there per this excerpt from a report....
Quote:
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ Last edited by SallyC; 04-25-2013 at 06:48 PM. |
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04-25-2013, 09:59 AM | #4 | ||
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Sorry about the links, Eddie. Info was moved from "breaking news" to just news or, the one that angers me, "Business news."
This is an upsetting development as so many people wanted this drug or needed it as they have no where left to stick. ANN |
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04-25-2013, 10:30 AM | #5 | |||
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Wisest Elder Ever
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It's disappointing as my own Neuro mentioned it to me at my last appointment and wanted me to try it. Now......I don't think I'm willing to take the risk.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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04-25-2013, 04:36 PM | #6 | |||
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Elder
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When I saw "PML" in the news report I'd read, I crossed that drug off my list
Just find a cure, already...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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04-25-2013, 04:45 PM | #7 | |||
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Magnate
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Dx RRMS 1984 |
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04-25-2013, 06:48 PM | #8 | |||
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I'm staying away from anything where PML is a risk. Nothing is 100%, even if my blood test says I am not at risk for that infection...yeah...
I have psoriasis, which isn't always in a flare. For that, I'll see my dermatologist for a topical ointment script, if need be...
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"Thanks for this!" says: | SallyC (04-25-2013) |
04-25-2013, 07:38 PM | #9 | |||
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Member
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I just came on Neurotalk to post something about BG-12 (Tecfidera) and PML but I see you already beat me to it! This is very sobering and scary news.
Here is another article on the issue which I think does a very good job of explaining the problem. There are a couple of neurologists in the article who state the risk of PML should be of concern. http://www.everydayhealth.com/multip...6pLid%3D304022
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On Tysabri and love it. . |
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04-25-2013, 08:31 PM | #10 | |||
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Fact that it lowers white blood counts makes me & neuro more excited since i'm always 2x limit.
Anyone that gets scared off by a few cases of PML baffles me since it's been in use for a decade pre-modded version. To each his own, I called Biogen again today to ask if my script got in system yet - nope. They have a mountin of faxes for new patients. Only thing i'm not looking forward to is first month's side effects but i'll cope & try my hardest to keep swimming 20-30 laps/day throughout. 30 today. I'll know if it's helping within 1st week which hopefully will be next Monday. I need a Medrol dose pack in the worst way to stop this flair but i'll wait & hope to regain some of what i'm losing. MRI of brain & cervical w/wo contrast set for Tuesday. Getting blood drawn tomorrow, i'll have baselines & yes i'll post my mri shots. I know this one will be ugly. |
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