Thank you to everyone who has replied I'm most grateful for your support. My neurologist refuses to look into ms now because the MRI didn't show anything. Mine also feels like an ice pick and with pressure. I wish I could change my neurologist however I live in England and here we have waiting lists of around 10 months, I was rushed through because of how much pain I was in, I kept going to the emergency room thinking I was losing my sight and I think they just don't like people kicking up a fuss and so I got saw sooner by the first available neurologist. He's a nice man but because my mri was ok he just keeps saying I'm having a migraine, I firmly believe that I'm not and my doctor agrees. It's very upsetting, Iv had 2 appointments with him now and he says your mri is fine therefor there is no reason for the pain, almost like Iv gone crazy or something

What did your vision test as? What is your doctor proposing is happening?

Sorry you have to wait so long, to see another neurologist.

nothing much as happened really, my eye pain went away for a couple of weeks and then returned, my neurologist thinks i have a-typical migraines, i am taking tregretol and nortriptyline, none of these help so every day im in pain. i dont know what else to do. i cant change my neurologist as in the uk we have a long waiting system and are allocated whichever neurologist becomes available. i went to him and said that iv heard of cases where a person has ON but it hasnt shown on the mri or eye test and he said that he's never heard of that happening so he's not willing to even consider ON. im really frustrated by it all and getting nowhere. he wants to do another mri but believes the results will be the same, he is also considering doing a nerve block in my neck, this worries me as i have no diagnosis so im not sure what im being treated for.

The nerve block would probably be to see if the pain goes away; as it sometimes will for migraines with that sort of treatment. Sounds like he's trying to rule out migraines through trying the treatment, and he also may very well be trying to get you out of pain the way he thinks is best .

Sorry that you have such a situation with the neuro. We have the same silly waiting system here in Canada...although we can choose our specialists (neuro). It just depends on how long one is willing to wait. It can be over 2 years to see one that specializes in a particular area within neurology like MS.
Can you be put on a waiting list for another neuro?

With love, Erika

Did you ever see the Optometrist and/or Opthalmologist?

If so what was the outcome?

Good luck with the Neuro/Opthalmologist on Tuesday. Many
times they can DX your illness, faster than a regular Neuro.

Let us know how it goes.

sally my opthamologist was a while ago now, my exam was fine. i asked them if there was any sign of ON and he said there wasnt. my eye and cheek feel like there is pressure behind, when i lean forward the pain increases, when i lay back it pretty much goes, weird hey

I got a fairly quick dx (only a year) after my eye problem started, and MRI showed lesions when a doctor finally gave me one, my first, and Visual Evoked Responses (have you have these VER's? They are easy to do an relatively inexpensive). the first doctor I saw after I got double vision, pain, and double vision was an opthalmologist who just said there was nothing wrong with me. I sat in his office and screamed because this was, now a severe symptom after more than thirty years of other symptoms. Nobody paid any attention to my screams, as if I were not there. I was on Maui where we often spent vacations.
Later, in Seattle, I had the positive MRI and the positive VER's (although I have no idea if the MRI was in a visual area), so the the doctor (a GP in practice with a neurologist) just said "I think you have MS". As I say, only a year to get that dx after over thirty years of symptoms.
My ON lasted for 8 years. The neuro opthalmologist I saw at that time didn't think steroids increased healing of ON. I patched the eye, covered the TV set so I could listen and not watch, stopped going to movies, always wore a hat outside to block light, and these things helped. Also, I then saw Dr. Swank and he put me on the radical low fat diet and that helped. I was still having double vision and a drooped lid when I finally was completely healed in a prayer service, suddenly and unexpectedly. I say this not because all healing services produce such results--but my neuro opthalmologist had before and after pictures of my drooping eyelid, and he had no reason for the sudden cure. I had many years of perfect eyesight, until I got hit by forest fire smoke here in Los Alamos. This smoke-eye situation has been so bad that I have to evacuate, at great expense, every time it happens. My eyes roll back in my head in spasm, and I cannot see at all for ten minutes, during that problem with smoke. Many tests done, opthalmologist says eyes are not the cause, nerves in the brain (or whatever she means by "what is behind the eyes" is the cause.
I also have Porphyria, so it's never certain which of my disease caused these problems.
Just describing what happened.
One symptom I did share with others on this list was that I had poor color vision on tests, some years before dx and some years before ON.