[SallyC]

Good luck and good wishes for you.

I hope TEC works for you, if you try it.

[Kitty]

I had my Neuro check-up appt yesterday (6 months on Tec) and everything looked great.

I had my blood tested in July and he said that it all looked perfect. No liver enzyme problems and the wbc was fine.

He wants another MRI in December but it will probably be closer to March before I get it done. Too much family stuff going on Nov - Feb. I'm going to be a grandma at the end of November to twin girls!!!

[Kitty]

Yesterday I had my first full day with no flushing/tingling side effects.

Granted the ones I still have are very mild and not very often but I still get them. Nothing like it was at first, though.

My Neuro said that Singulaire stops most tingling and/or flushing but mine are few and far between.....plus, I'm not anxious to add another med to my arsenal.

[barb02]

Saw new neuro today and he proposed tecfidera as a possibility if my MRI show new lesions/disease progression. Have been reading the posts here with interest. I am hesitant to try anything new after having so many problems with other meds, but this one seems to have the "most benign" side effects, in the words of my doctor.

Kelly, I already take singular so maybe that is a plus.

[Kitty]

Barb, I've had the best experience with Tec out of any of the meds available for MS that I've taken. I hardly ever get any side effects anymore. I've been on it a little over 6 months and the instructions said the side effects would decrease with time. It's been the easiest DMD so far. If you do decide to take it I hope you have a positive experience with it.

[barb02]

Kelly, have often does your neuro check your white blood count?

[Kitty]

Barb, he's told me every 6 months to begin with.......first year, I suppose. I have another appt with him in December and will probably have it checked then, too, since my last blood test was in June.

I just opened my last bottle of 60 pills. I will have to qualify for patient assistance again but that shouldn't be a problem. My financial status never changes!

I hope you can give Tec a try and that it agrees with you.

[jprinz99]

Question about drug/financal assitance to the tec gang:

As many of you know as of this year I started to get assistance paying for Tec from Patient Assistance Network foundation via Biogen (am on medicare plan). When do I reapply for 2015 and should I call PAN or Biogen/Tec??

thanks

[Kitty]

Originally Posted by jprinz99

Question about drug/financal assitance to the tec gang:

As many of you know as of this year I started to get assistance paying for Tec from Patient Assistance Network foundation via Biogen (am on medicare plan). When do I reapply for 2015 and should I call PAN or Biogen/Tec??

thanks

I called PAN and they said that they had to submit my assistance request to Biogen for 2015. Apparently they have several assistance groups to use so I guess I might not get assistance from the same group I did in 2014. It was a little confusing to me but the lady assured me that I would receive assistance from some group.

I am on my last bottle of Tec right now and was instructed to call back when I have 1 week left and it would be refilled. Makes me nervous to get down that low and not have anymore yet but I'll just have to trust them.

[barb02]

I am wondering that since the chemical breakdown of tec is similar to tysabri, would I have the same allergic reactions to it.