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-   -   The "Positive" Tecfidera/BG-12/Fumaderm (modded) Thread! (https://www.neurotalk.org/multiple-sclerosis/187662-positive-tecfidera-bg-12-fumaderm-modded-thread.html)

nicolfe 05-02-2013 12:03 PM

1 week down
 
I started Tecfidera last Thursday and so far so good. I had minimal short lived flushing after the first dose. Days 3 & 4 some stomach upset a few hours after the morning dose (could have been anything though) and then today I started the 240mg and wow do I have a headache, but that's it. Not too bad at all, very excited!

Sparky10 05-03-2013 10:52 AM

This isn't very positive, but I just found out MSActivesource has no record of my application or prescription. It was sent on April 8. Oh joy, now I get to start the whole process all over again.

I plan to call MSAS at least once a week.

EddieF 05-04-2013 09:09 PM

lol Sparky. I haven't posted yet cause dr sent script to a co to help me get med from a co which would contact insurance co and contact my pharmacy co to setup shipment, to make it easy for me. Guess he forgets or doesn't know I can speak on a telephone.
1 call per day (at least) by me last week. I got script to pharmacy, was rejected as of now but that's good news! I accomplished the script to pharmacy, this week it's up to insurance co so pray it's in my hands 1 week from right now.
Yes they'll be more calls to make before it's said & done.

Swam 30 laps today, keep positive!

Bethsca 05-05-2013 02:33 PM

Waiting for the other shoe to drop
 
Quote:

Originally Posted by EddieF (Post 980755)
lol Sparky. I haven't posted yet cause dr sent script to a co to help me get med from a co which would contact insurance co and contact my pharmacy co to setup shipment, to make it easy for me. Guess he forgets or doesn't know I can speak on a telephone.
1 call per day (at least) by me last week. I got script to pharmacy, was rejected as of now but that's good news! I accomplished the script to pharmacy, this week it's up to insurance co so pray it's in my hands 1 week from right now.
Yes they'll be more calls to make before it's said & done.

Swam 30 laps today, keep positive!


Saw my neuro monday, and she wrote a script for it, but i decided to stay on Copaxone for now. I've gone quite awhile w/o relapse and i don't want to rock the boat. So i'll wait until i have a relapse (hopefully never) to make a change. Also, i already have financial assistance in place for the copaxone. But best of luck to everyone who tries it!

karilann 05-06-2013 04:52 PM

called Ms active source today and they have my application for the BG12! Said they received it April 20. They told me to wait for the pharmacy to call!

Sparky10 05-06-2013 05:18 PM

Just called, and again, they don't have my application. Tomorrow I'll make sure my neuro's nurse has the right fax number. It won't be such a new med by the time I get it.

EddieF 05-13-2013 09:15 PM

keeping with thread title...
 
Good news!! I pick-up starting dose 120mg 2x/day for 1 week tomorrow!!!
Next week I get the full 240mg 2x/day dose!! Hurray!!
Do I look forward to flushing, pooping, and possible headaches? No, but ..Hurray!!!

EddieF 05-15-2013 12:37 PM

Started the 120mg twice a day for 1st week dose last night & no side effects at all..yet! Just tell yourself no problem and think of bright side.

mochagirl13 05-15-2013 01:30 PM

Just finishing my 2nd week. So far a little flushing and headaches. When I take ibuprofen or aspirin at the same time no headache. Neuro appt. next month will try to get ampyra and see if that will lessen impact of ms. Reaction better than what I had with rebif. Pop the pill and go. Flushing could be heat related, 90 degrees yesterday.

keywordms 05-19-2013 10:37 PM

day 4 starting dose - tecfidera
 
Quote:

Originally Posted by EddieF (Post 979068)
Since i'm expecting Tecfidera to shine, amongst a HUGE portion of MS'ers, it's time for a positive results thread for the soon to be success stories.
I'll reply after my 1st week on & yes, i'm hopefull it'll be positive.

To my amazing astonishment, its been better then i had ever anticipated- im knocking on wood as i write. Flushing mild, but again this is half a dose, twice a day for now. Immediately, within 3 hours of swallowing the tightness in my left arm disappeared (there is anti-imflammatory effects). Mild headache this evening (1 advil seems to work). Other then that i sooooo cant complain after having the flu from avonex once a week::D


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