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Old 12-28-2013, 05:47 PM #1
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Default update on Tecfidera

How has the Tecfifera worked for you?
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Old 01-04-2014, 12:51 PM #2
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Default I went back on Tysabri

I will say Tecfidera is a great drug & excellent form compared to shots.
Side effects were nill after a month or so & Tecfidera surely works.
I wanted Tysabri back. My MS progresses on either but Ty has the edge.
If I has to pick between any of the injectables or a pill twice/day, i'd surely try the pill IF, shots weren't holding me/you steady.
For travelers, a pill's hard to beat.
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Old 01-27-2014, 11:00 AM #3
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Default Tec coming tomorrow...just a bit nervous.

Well my meds are due here tomorrow and as much as I am happy I don't have to do shots every day, I am a little nervous about the tec, but staying positive. I'm just a bit confused about the aspirin and antacids I have to take with it. Can someone tell me what has worked best for them? What brand of antacid of aspirin?
Thank you!
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Old 03-11-2014, 07:51 PM #4
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Default New to Tecfidera

Hi everyone,

I was Dx 6/2004. My Dr put me on Avonex, after 6-8 months he changed me to Rebif because I am a major needle phobe! I used Rebif for about 4-5 years and had to discontinue because of needle site reactions. He put me back on Avonex and I have used it until about 1 1/2 months ago. I finally hit a major level of needle fatigue. My current doc prescribed Tecfidera and I started on it on Feb. 23. The 1st week and a half were very uneventful, maybe a but of flushing. The last few days I am having quite a bit of stomach cramping and mild headaches. I also have noticed more fatigue than is typical for me, but I am also dealing with a number of stressors! I plan to battle through it until the dr orders blood work. As long as that comes back ok I plan to stay on this path.
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Old 05-06-2013, 04:52 PM #5
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Default

called Ms active source today and they have my application for the BG12! Said they received it April 20. They told me to wait for the pharmacy to call!
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Old 05-06-2013, 05:18 PM #6
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Default

Just called, and again, they don't have my application. Tomorrow I'll make sure my neuro's nurse has the right fax number. It won't be such a new med by the time I get it.
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Old 05-13-2013, 09:15 PM #7
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Default keeping with thread title...

Good news!! I pick-up starting dose 120mg 2x/day for 1 week tomorrow!!!
Next week I get the full 240mg 2x/day dose!! Hurray!!
Do I look forward to flushing, pooping, and possible headaches? No, but ..Hurray!!!
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Old 05-15-2013, 12:37 PM #8
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Started the 120mg twice a day for 1st week dose last night & no side effects at all..yet! Just tell yourself no problem and think of bright side.
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Old 05-15-2013, 01:30 PM #9
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Smile

Just finishing my 2nd week. So far a little flushing and headaches. When I take ibuprofen or aspirin at the same time no headache. Neuro appt. next month will try to get ampyra and see if that will lessen impact of ms. Reaction better than what I had with rebif. Pop the pill and go. Flushing could be heat related, 90 degrees yesterday.
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Old 05-19-2013, 10:37 PM #10
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Default day 4 starting dose - tecfidera

Quote:
Originally Posted by EddieF View Post
Since i'm expecting Tecfidera to shine, amongst a HUGE portion of MS'ers, it's time for a positive results thread for the soon to be success stories.
I'll reply after my 1st week on & yes, i'm hopefull it'll be positive.
To my amazing astonishment, its been better then i had ever anticipated- im knocking on wood as i write. Flushing mild, but again this is half a dose, twice a day for now. Immediately, within 3 hours of swallowing the tightness in my left arm disappeared (there is anti-imflammatory effects). Mild headache this evening (1 advil seems to work). Other then that i sooooo cant complain after having the flu from avonex once a week:
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