Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-06-2013, 01:24 PM #24
karilann's Avatar
karilann karilann is offline
Member
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
karilann karilann is offline
Member
karilann's Avatar
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
Default

I still think Tecfidera will be a welcome new drug for some people. I have 2 pharmacist friends who really like the drug and are happy it has hit the market.

Remember the PML was in 1 or 2 cases over a 30 year span treating psoriasis. Tasabri is very much liked by many MSers, but it has a risk with it also.

For those who can not take the interferons, this may be their answer.
I felt much more energetic while on the Tecfidera and shortly after stopping it. Now I am feeling a bit crappy again and will be starting Avonex tomorrow. I still believe the Tecfidera perked me up a bit.

All these drugs are scary because it is a crap shoot as stated. Its a very personal decision between the patient and doctor on what to try.
I did fine on the interferon for 11 years but was very sick and tired of the shots and my skin was so sore all the time. So I tried the Tecfidera and I think if they would titrate it up more slowly, maybe I could have tolerated it. Not sure....will never know....but I'm glad I gave it a go.
I guess only time will tell how the general MS population really does on the Tecfidera.
For me personally, I am not ready to dismiss the medication. All medication carry risks. You have to be your own advacate.

Wish me luck with the Avonex!
__________________

.
If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice.
.
karilann is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (08-06-2013), jprinz99 (08-07-2013)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lyme: such a thing as "false positive"..? 22dreams Lyme Disease, Shingles and Other Microbial Conditions 0 03-25-2010 05:36 PM
"positive thinking" and healing-to Annie and others. alice md Myasthenia Gravis 24 11-01-2009 05:53 PM
Prayers/Positive Thoughts For Our Gene, aka, "ponyboy", Please...... Ponygirl Sanctuary for Spiritual Support 71 11-30-2006 01:43 PM


All times are GMT -5. The time now is 03:35 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.