no and once i started saying that everything they were saying would have been true a week earlier but was not the dang social worker slipped right out of the room:mad:

How are things going today, Clark? I wish there was someone who could be a watchdog and a voice for you. Don't get me wrong.....I know you're speaking up when you can. I know it's hard to question things after the fact. I just hate it when someone else acts like they know what's best for you while you're trying to tell them that YOU know what works and what doesn't work for you.

True and it's good for the rehab hosp to know that a fam.
member is interested in your rehab and your well being.:rolleyes:

Clark-

First I am sorry that you lost your dad. It is good that you spoke w him.

I am so sorry for the way you are being treated. Is there an Ombudsman for the disabled or for nursing home patients or, depending on your age, the elderly in Ohio? In fact if you can find any of these, call them. They can lead you to the person that may be able to help you.

Best to you,
ANN

This is fm Disability Rights Ohio. It isn't exactly what you need but it says that if you don't know if they can help or not to "call us anyway" and they will see if they can find who can help you.


Need Our Help?

"If you think that your legal rights have been violated because of a disability, Disability Rights Ohio may be able to help. If you think you have been abused or neglected, discriminated against, denied services or been unable to access public facilities, you should contact our Intake Department. If you are not sure whether we can help, contact us anyway. If we can't help, we'll try to connect you with someone who can. Disability Rights Ohio does not charge its clients for services.

Disability Rights Ohio Intake Department

If a person with a disability needs help from Disability Rights Ohio, the person with the disability, or the parents of a child with a disability, can contact Disability Rights Ohio. Other people can submit a request for help on behalf of a person with a disability. For those requests, Disability Rights Ohio will contact the person with a disability for direction. Read more about eligibility for Disability Rights Ohio services."

Intake hours are weekdays (except holidays) from 9 a.m. to 4 p.m.

Voice: 614-466-7264 or 1-800-282-9181 (toll-free in Ohio only)

I hope this helps.
ANN

update
 

well i was discharged on july 2. i went straight to my neuro for follow up. he said my ms seemed to be "progressive" at this point and wanted me to go to henry ford hospital's ms clinic and start back on tysabri. he said he had a patient progressing like me and he sent her to henry ford and did not hear from her again, he seemed to think that was good lol. he also showed me the mri image that sent me there in the first place where it was clear the disc was into the spinal cord, so i'm confused about that part... anyway i did not want to go into the hospital immediately so his office got me an appt on the 16th- he had suggested i go there to the er...

well when i got to my sisters house they were not ready for me, didnt even have a bed in my bedroom. i had to sleep on the couch. that night i got stuck on the toilet, peed myself trying to get to the toilet in the middle of the night- same thing happened the next night too. just too far to walk when walking so slow...

im settled in pretty nice now, and ordered a strap to help lift my legs into bed, dont need it too often now, which is nice.

i have 2 home health care companies fighting over me lol and ill be trying to get help to get a scooter to get around. i was at my pcp last tuesday for one week follow up and he asked if i wanted to go on suboxone, i misunderstood and thought he thought i was having withdrawals but i want to try it now, as i have fairly bad pain in my legs and feet.

i had a potty chair put in my room so no more accidents, and am avoiding overeating because i hate the cleanup etc of that thing. also keeping my blood sugar in line. i am getting stronger, not every day, but every couple days, as long as i dont overdo the pt. after mondays pt i was beat the rest of the day and tuesday was rough too from that. on wednesday i explained to the pt guy that we have to go lighter as the pt girl from the home advised me. she said it took her some time to realize it but i had to be really careful to not overdo it and cause a setback...also im hoping to get 3 days of pt instead of the 2 days/week theyt scheduled me for.

overall im feeling better and hope to be walking a bit more soon, quality fishing weather is slipping away ;)

So glad to hear that you are home and getting settled. Any
improvements are always a good thing, no matter how small.:)

Keep up the good work and feeling better.:hug:

I'm glad you're home now, Clark. I hope things go smoothly for you and you get the help you need and deserve without too much hoopla.

Anything that makes your life easier is a good thing so don't be hesitant to ask for things that will help you. The bedside potty chair is a Godsend at 2 AM when you know there's no chance of making it to the bathroom. I'm glad you're speaking up about the PT, too. If it's too much or too grueling then it's not going to help.....and only you know what works best for you.

I really hope you get some good fishing in soon! :)