I posted about topamax in the migraine/headache forum and another member mention that her neuro told her to eat kiwi for the tingling. It's super high in potassium and had ought to help. I took her advice (as I'm keen on the fruit) and it does seem to make a difference.

I haven't been on it long, but I'm...sceptical. I'll let you all know how it goes when it's been a few months.

This is super interesting - I have recently tried Fampridine, and because of the tingling, dizziness (and a whole stack of other things too) had to stop. I later read that it is a potassium channel blocker. Seems to be a common thread with this symptom.

Thanks for the heads up

Cheers

Lyn

My Neuro always gave me prescription potassium (vita K, I think?),
when giving me steroids, because she said it causes loss of
potassium. No other Neuro ever thought that was necessary, but,
that 1st time, was the only time, the steroid infusion worked for me.
Now I wonder if that was the reason. hmmmmm?

I find that when my tingling gets really bad, and mind you, I've only been on this Topamax for a week, eating a kiwi helps for a day or so. I've tried taking a K supplement, but the one I have only gives you 3% of your daily value and I'm thinking I need a whole lot more to overcome my symptoms.

All in all, kind of annoying. But if this helps in the long run, I'll take it.

Bananas are also high in potassium.

OMG...another person with this (not that I'm happy for you, lol)...my advice, keep your fingernails short. Other than that, you need to figure out what your triggers are. Mine started with tingling/itchiness around left side of face, ear, across left cheek bone & my nose & on left shoulder blade. It has eased somewhat, after trying Neurontin (I couldn't continue with it-I have weird reactions to some meds-genetic).

As for the tremor...does it happen all the time or just when you hold something? When leaning against something? They are positional tremors if so. Always good to check with a doctor on this kind of thing.

I hope you find either a med that helps or some natural rememdy. Keep at it & good luck!

My tremor is definitely an intention, but can also be positional/resting if I'm tired or done too much or whatever.

The itching is on my trunk a lot-especially the bottom of my shoulder blades on my back, right where I can barely reach. Just enough to drive me nuts.

The itching has either lessened in the past few days or I'm getting used to it. Either way, I can sleep through the night with just one dose of Benadryl, so I can't complain. The BF doesn't mind though-he hates to see me this uncomfortable (I try not to pout, but I def freaked out the other night).