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05-10-2013, 11:09 AM | #1 | ||
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Junior Member
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Hello again--
I went to the neuro yesterday and while MS is a possibility, she hasn't officially diagnosed me. I am, however, now on Topamax for the tremor and sort of the migraines. Does anyone else have experience with this drug? One of the side effects she mentioned was an increase in tingling and numbness, which might drive me even more insane than I already am. I'm nervous about that. I'm just a little freaked out since I want a diganosis. Thanks for the help-- PS--the itching and zappiness seem to have decreased a bit, but benedryl is a lifesaver at night, as is my boyfriend. He helps me not scratch until I bleed. |
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05-10-2013, 12:22 PM | #2 | |||
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In Remembrance
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Hi Wings, Even though you haven't yet met all of the criteria
for a MS DX, I'm happy that your Neuro is testing you and treating your symptoms. It shows the he/she is validating your illness and not making you think you're crazy, as some do.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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05-10-2013, 05:36 PM | #3 | |||
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Wise Elder
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I don't have any experience with Topamax. I know others in the MS forum have used Topamax. You can also post a question in the headache forum.
I'm glad your dr. is being proactive and testing you to rule out MS. Also, sounds like you have an awesome BF who is supportive. |
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"Thanks for this!" says: |
05-14-2013, 02:44 PM | #4 | ||
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Junior Member
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I hope you don't mind me posting here--I haven't been diagnosed with MS, but my symptoms are most like it.
Anyway-- For the itching-is it potentially all the time? (or most of it) Is there anything I can use besides benedryl? It's exhausting. And the tremor-is it mostly an intention tremor? Or something else? Thanks for the help. I might not know what's wrong with me, but I find this reassuring. |
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"Thanks for this!" says: | ANNagain (05-14-2013) |
05-14-2013, 03:02 PM | #5 | |||
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Magnate
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Quote:
http://www.nationalmssociety.org/abo...ing/index.aspx http://ms.about.com/od/signssymptoms...-Sclerosis.htm
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Dx RRMS 1984 |
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05-14-2013, 03:09 PM | #6 | ||
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Junior Member
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I suppose I should clarify - I take benedryl and it doesn't totally clear it up, but it does lessen the itch.
However, it's good to know ( and also bad to know) that it wouldn't help with a neurological itch that would come with MS. I just wish I knew what was wrong, you know? But I seriously seriously seriously cannot tell all of you how much I appreciate the feedback. Makes me feel less crazy with all my symptoms and whatnot. |
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05-18-2013, 09:58 AM | #7 | |||
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Member
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Quote:
As for the tremor...does it happen all the time or just when you hold something? When leaning against something? They are positional tremors if so. Always good to check with a doctor on this kind of thing. I hope you find either a med that helps or some natural rememdy. Keep at it & good luck!
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It isn't a quest; it's the unknown reaction to the unaswered question. If you don't ask it, you'll never know. The journey, needs answers. . |
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"Thanks for this!" says: | wingsscrub (05-18-2013) |
05-18-2013, 04:06 PM | #8 | ||
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Junior Member
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Quote:
The itching is on my trunk a lot-especially the bottom of my shoulder blades on my back, right where I can barely reach. Just enough to drive me nuts. The itching has either lessened in the past few days or I'm getting used to it. Either way, I can sleep through the night with just one dose of Benadryl, so I can't complain. The BF doesn't mind though-he hates to see me this uncomfortable (I try not to pout, but I def freaked out the other night). |
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