advertisement
Reply
 
Thread Tools Display Modes
Old 05-10-2013, 08:09 PM #1
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
Default Lumbar Puncture

Who has had one? Is it deFinitive for a diagnostic or enough to start treatment of some sort? What's the pain and recovery like?
strizzlow20 is offline   Reply With QuoteReply With Quote

advertisement
Old 05-11-2013, 07:41 AM #2
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

Hi Strizz

I never had to have one. I was the poster girl for a super-fast, by-the-book diagnosis and presented with classic symptoms and an MRI that looked like it had been in a snow-storm.

But, I just wanted to post and say that I am hoping that it is ok for you, and to wish you luck.

I will be thinking of you.
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 10:08 AM #3
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Default

Hi strizzlow,

I did have a Lumbar Puncture(LP) many years ago. My LP was positive and I received a diagnosis of MS.

There is a criteria for diagnosing MS --- The McDonald Criteria. A positive LP can help support a diagnosis of MS but by itself will not give you a diagnosis of MS. The LP is used in testing of other conditions as well as MS.

Information about a LP:
http://www.nlm.nih.gov/medlineplus/e...cle/003428.htm
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 11:24 AM #4
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
Default

Quote:
Originally Posted by Snoopy View Post
Hi strizzlow,

I did have a Lumbar Puncture(LP) many years ago. My LP was positive and I received a diagnosis of MS.

There is a criteria for diagnosing MS --- The McDonald Criteria. A positive LP can help support a diagnosis of MS but by itself will not give you a diagnosis of MS. The LP is used in testing of other conditions as well as MS.

Information about a LP:
http://www.nlm.nih.gov/medlineplus/e...cle/003428.htm
Sounds good. I'll make sure I talk to my doctor. I'm not sitting here hoping I have MS, but I honestly think my symptoms are pointing towards some form of it. It's been 3 weeks and my vision has still been off and I haven't taken any meds. Yesterday I did some physical activity and I noticed my right foot went numb for quite a while. He also said there was mild abnormality on the eeg on this foot so we will see. Thanks again for the information.
strizzlow20 is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 12:43 PM #5
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Default

Quote:
Originally Posted by strizzlow20 View Post
He also said there was mild abnormality on the eeg on this foot so we will see.
Is it possible you mean you had a EMG? If so and you had an abnormal EMG that would not indicate MS. EMGs are used in diagnostic testing for other conditions not MS.

EMG information:
http://www.nlm.nih.gov/medlineplus/e...cle/003929.htm

EEGs -- attached to your scalp with *goop*
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 03:17 PM #6
KittyLady's Avatar
KittyLady KittyLady is offline
Member
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default

strizzlow20, I have had 2 LP's and in MY experience it was the worst test. After both my LPs, I developed the spinal headache and on the 2nd LP I actually had to go back to the hospital and have a blood patch done to close the leak from the LP. Now, thats just MY experience, many have had it done and it was no big deal. I believe its totally an individual experience. I hope yours goes smoothly and no headache!! My LP was the last straw that got my dx.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 03:36 PM #7
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
Default

Quote:
Originally Posted by Snoopy View Post
Is it possible you mean you had a EMG? If so and you had an abnormal EMG that would not indicate MS. EMGs are used in diagnostic testing for other conditions not MS.

EMG information:
http://www.nlm.nih.gov/medlineplus/e...cle/003929.htm

EEGs -- attached to your scalp with *goop*
I may be wrong. I went for EEG and Evoke Potentials. The test on the right foot is where they attach a electrode and measure the response from the shocks to the brain. This is what he said was slightly abnormal because I don't think I could feel the shock in my heel of my foot that well but everywhere else I could.

I believe it was this:

Somatosensory evoked response or potential (SSER or SSEP), which is when the nerves of the arms and legs are stimulated by an electrical pulse.


Everything else, eyes and ears, came back fine. Thank you for the correction,I'm learning as I go .
strizzlow20 is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 03:42 PM #8
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
Default

Quote:
Originally Posted by KittyLady View Post
strizzlow20, I have had 2 LP's and in MY experience it was the worst test. After both my LPs, I developed the spinal headache and on the 2nd LP I actually had to go back to the hospital and have a blood patch done to close the leak from the LP. Now, thats just MY experience, many have had it done and it was no big deal. I believe its totally an individual experience. I hope yours goes smoothly and no headache!! My LP was the last straw that got my dx.


Thank you for your input. It was something the doctor sort of reccomended because he's saying he can rule out MS 99.9% if it comes back negative. I don't know how confident he REALLY is but he thinks my MG may be causing the eye symptoms and not MS. Who knows though because wavy and partial visual distortion doesn't add up to me as MG and I don't know about MS either because I have 0 lesions and no optic neuritis. This is probably going to be a waiting game and I am going to have to adapt to my vision problems. Thank you again on the LP advice! I'm going to go through with it.
strizzlow20 is offline   Reply With QuoteReply With Quote
Old 05-11-2013, 04:18 PM #9
GladysD's Avatar
GladysD GladysD is offline
Member
 
Join Date: Jan 2008
Location: New England
Posts: 972
15 yr Member
GladysD GladysD is offline
Member
GladysD's Avatar
 
Join Date: Jan 2008
Location: New England
Posts: 972
15 yr Member
Default

Quote:
Originally Posted by strizzlow20 View Post
Who has had one? Is it deFinitive for a diagnostic or enough to start treatment of some sort? What's the pain and recovery like?
I had one back in '11. I'd already been diagnoses, so I am uncertain about whether lesions show up in your lumbar test are enough to dx you with MS?

I had an ok experience with it. I didn't find it painful. I came home and took a nap. Took some naproxen for the headache, more preventative for the headache they mentioned could come with the after effect of having the spinal tap.

There were lesions discovered there. Go along with the lesions on my brain that were discovered in my MRI's.

Best of Luck on your LP.
__________________

.
GladysD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-11-2013)
Old 05-11-2013, 05:27 PM #10
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

i was dx'd based on my mri's, sx's and neuro exam.
it was after that, that i had an LP which was + and sealed the deal.

my test went well. i drank a lot to be hydrated, the radiologist that did it was at the hospital and he used a floroscopy machine to see where the needle was.

i didn't get the spinal headache which some people do. they numb the skin before putting the needle in. i laid on my stomach. IF the dr is hurting you too much ask them to STOP. you are your own best advocate even during a test.
it's not easy, but do-able.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-11-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
How bad does the lumbar puncture hurt? MistiC Multiple Sclerosis 41 05-02-2013 12:18 AM
Whats a lumbar puncture like? peacheysncream Spinal Disorders & Back Pain 8 12-01-2012 10:41 AM
What is a lumbar puncture like? peacheysncream Traumatic Brain Injury and Post Concussion Syndrome 2 10-11-2012 09:15 AM
Terrified about having a lumbar puncture lynn01 Peripheral Neuropathy 15 05-08-2011 09:15 PM
Lumbar Puncture BonDon Peripheral Neuropathy 10 03-05-2010 02:19 PM


All times are GMT -5. The time now is 06:20 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.