Hey everyone. So for all the people who were trying to help me out a few weeks ago and wanted to know how my appointment at cleveland clinic went ....here is the result. It was pretty much a waste of time.

He has decided he does not think I have MS which is good, he had bloodwork done to check heavy metals (including copper deficiency) and i will get those results in a few days.

He suggested maybe redoing my skin biopsy there at the clinic because the numbers were low (just not low enough to call it SFN) but I said that for now I didnt want to do that (just had it done 6 months ago so maybe after a little while longer).

So in the end he said what every doc has : he doesnt know what is causing the problems...

And he increased by gabapentin dose to 900 mg 3X per day (From 600 mg 3X per day) in hopes that this will help. I will let you all know results from heavy metal test when they come in.

Thank you all for your insight and advice

Good luck with everything, I hope the results of the heavy metal testing are good. I am getting a heavy metal test done as well, but I don't believe it included anything for copper. I will ask my Neuro about that. Was it a urine screen or a blood sample? As far as your experience with the Cleveland Clinic, I had a similar one as well. I was diagnosed with MG back in 2008 and the Cleveland Clinc is a place I went to that said I didn't have anything wrong with me. I think they're just like most doctors and most don't tend to think outside of the box. Good luck with everything

Thanks for reporting in Boiler.

Stay with us, we'll just add you to the loooong "wait and see" list.
Chicken Doctors..

strizzlow20 - it was blood test. and yeah my experience at the clinic was pretty frustrating...

SallyC - thanks I will def. let you all know if anything changes.

boiler, what is SFN?
sorry you didn't get the answers you needed. hopefully down the road you will.

Nancy - SFN is small fiber neuropathy. When I was tested for this the numbers I had to be compared against (the standards) were for people older than me (they have no data on my age group) and my numbers for epidermal nerve fibers were already considered low (but not low enough to be in the bottom 5% of the standards data). I will probably have the biopsy redone in a year or so if I continue to have problems.