Hello everyone!

finally, the time has come! Had my appt w/ the new neuro. So far, I like him. He didnt try to push any drugs on me and said that was my choice. Theres so much to cover with my disease, so alot was left out. But the important ones, I feel, were covered.

He thinks those scary episodes in my sleep are seizures and said if it is seizures I will have to do meds to avoid brain damage .

My walk is far worse today so he was able to witness me walkin like a drunken zombie. I think whats causing the walk to be so bad are my leg muscles are tightening up super hard. (of course I dont notice that until after the appt.)

So now I am waiting to get scheduled in for
--An mri of neck brain spinal cord and cervical something..
Ive only had my neck and brain and that was 4 years ago, so im anxious to see what it all looks like

--ekg

--sleep study

with my speech being effected as bad as it is along with my walk, im starting to consider a dmd. By just symptoms, ive progressed alot in 4 years, so I feel like its risky Business to not do a dmd. Even tho they are risky business in and of themselves.

Sooo I was thinkin bout tecfidera..
I saw the 'positive' thread about it.. But then ive heard fron alot of others how they were red and couldnt get off the toilet due to diarrhea

he asked if I walked,with a cane or walker. Told him I didnt but used my gpas walkin stick for the ms walk and how I prolly wouldnt have been able to finish without the stick. He didnt prescribe a can tho.

he says I should be on disability
My previous neuro said 'youll never have to worry about disability'
So its good this doctor sees I need some assistance.

I guess from here I just need to keep positive

Sounds like you found a good Neuro. Keep us posted on your MRI and sleep study. It feels good to finally be able to see some light at the end of the tunnel, doesn't it?

Yes it does! I feel like a patient, not an enemy. Good to know there are docs out there that still care about patients!

I will definitely keep you posted

I'm so glad that you found a good caring Neuro. See, you're not
crazy, there really is something wrong.

Stay strong and let us know how it goes for you.

Thanks Sally!

I sure am lucky to have such an amazing support system. You ladies are so awesome! Ill definitely keep you all posted! (ill do so on this thread)

i'm glad you're getting some answers and that your dr is pursuing other tests/answers.

i hope this all improves for you. use a cane if you feel it will help steady yourself/gait. i couldn't walk without mine anymore.

I think I may give the cane a try.

I also have to be super cautious about this weather. Its been in the upper 80s and has been hell on my body so far.

I hope im not trapped inside all season

I'm glad you found a good supportive Dr. They are so hard to find these days no matter what field they are in. In your profile pic you look so young! How old are you if you don't mind me asking.

I'm so happy that you found this new neuro!!! I hope it works out for you.

Did you have an EEG or an EKG? An EKG is for the heart and EEG is for brain activity. An EEG would show, as long as you get in a deep enough sleep, seizure activity. Is that what you had done?

The cane is a good idea. I got tired of falling all the time. The cane does help. I had to use it daily for a while but now only use it if I am walking longer distances (more than 50 to 100 ft.). In the stores, I use the scooter. It's the only way I can make it through a shopping trip and still have some physical as well as cognitive functioning to drive back home. And, once I caught on to the scooter trick, I don't have to leave the store within 5 - 10 minutes of being there.

Let us know the results of your testing and how you are doing.

Hey Anya (edit oops Ayna) - get your old brain & cervical mri on disc & ask them to put it on same as your new scan so you can compare yourself w/o learning the program i use which takes some time. I love it though. Allows you to import ALL or any scans on pc or disc to compare at once.

Telling you, you & all will thank me once you's see how cool it is.