I have been in so much pain lately, my neuro says its nerve pain. He has now added to my already long ( to me) list of meds Topomax. Hes increasing me from 25mg to 200mg a day over the course of 4 weeks. I know nobody likes a pity party, but Ive been on 3 new meds and none of them seem to be working. I hope topomax will work, but this waiting to see stuff is still leaving me in so much pain. The other nite I seriously told my dh I just wanted to end it all if this is what my life is going to be like. But thank God and all the saints dh was there to say, "but I love you, and think of the grand babies, they love you too!" What a way to snap me back into reality and continue fighting!

QUESTION??? Does anyone else take topomax for nerve pain and does it do anything for you?

Way to go!!!!!

So your pain is the stabbing kind? I used to take gabapentin (neuron tin) for this pain. I had too many side effects from it so I stopped it and just put up with the neuropathic pain, since I don't experience it often. The type of pain I experience is from spasticity. Ugh...

I haven't been prescribed Topamax for nerve pain (although I suspect I've got some now). I've been put on it for my tremor and migraines. I'm still on a baby dose because if there's a side effect, I tend to have it. I am quite sensitive to new meds.

So far I find my appetite is a bit suppressed, fizzy drinks taste super weird (to the point where I don't drink them anymore) and every now and again I get nauseous for no good reason?

It does seem to have helped my tremor though...

Keep us posted.

Hi Kitty

I was prescribed Topamax for nerve pain (burning and such) and also because all my 'messages' were getting totally scrambled and my legs were just giving way and I was falling way too often.

I am only on a relatively low dose, I haven't had an 'MS fall' since starting the med, and I have only had one or two sleepless nights with burning legs/feet since I started it.

I so hope that this works for you - I know it is also prescribed for migraine (and, I think) for post-herpetic neuralgia for shingles pain as well as epilepsy.

Good luck and let us know how it goes.

xx

So far, the nerve pain seems to be quieting down alittle. Still have some but not nearly as bad. My appetite is pretty much gone. Im lucky if I eat one item a day, and drink one bottle of water a day. I have just lost all interest in eating and drinking. If I force fluids, I get nausea and vomit, so I dont force it any more. My tremors are getting worse, and my hand writing has gone from a 42yrs old to a 1st or 2nd graders. DH is panicing, me, Im like whatever, its just the MS. I talked to the pharmacist about the loss of appatite and not drinking and she said it was the topamax, so Im not real worried. Hey, maybe I;ll finally lose those extra pounds.. hehe!! (gotta find humor where I can folks!)