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Old 05-29-2013, 01:21 PM #1
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i couldn't have said it better than natalie.
besides credentials, drs should listen, look, examine and validate.
you knew in your gut she wasn't right so listen to that little voice.

and, good for your dh. it's good to take someone with you to appts for a 2nd set of ears. start to keep a sx (symptom) journal with dates. it might help the next dr. and, get copies of your mri's & reports to take with you. was your mri with & without contrast?

sometimes with dx'ing MS you might have to wait several months to repeat the mri's to check for changes. there is something called the McDonald Criteria that drs refer to when dx'ing MS. you might look for it and check it out.

your pcp sounds like a gem. please let us know how things are going.
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Old 05-29-2013, 01:38 PM #2
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Agree, with the above posters.

And NurseNancy, is correct, it could take time, and repeated MRI's to get a DX.

LP's can show lesions, and if you are having leg troubles, having that spinal tap, sure wouldn't hurt to have all the i's dotted and t's crossed.

So, sorry, you didn't get the compassion that you need
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Old 05-29-2013, 02:23 PM #3
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Quote:
Originally Posted by NurseNancy View Post
i couldn't have said it better than natalie.
besides credentials, drs should listen, look, examine and validate.
you knew in your gut she wasn't right so listen to that little voice.

and, good for your dh. it's good to take someone with you to appts for a 2nd set of ears. start to keep a sx (symptom) journal with dates. it might help the next dr. and, get copies of your mri's & reports to take with you. was your mri with & without contrast?

sometimes with dx'ing MS you might have to wait several months to repeat the mri's to check for changes. there is something called the McDonald Criteria that drs refer to when dx'ing MS. you might look for it and check it out.

your pcp sounds like a gem. please let us know how things are going.
I have a symptom journal I've been keeping for the last few months. The neuro glanced at it and that was all. She wanted to keep it but I made her give it back cause I knew we'd be asking for a 2nd opinion after yesterday.

MRIs were with and without contrast.
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Old 05-31-2013, 06:15 PM #4
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I have a symptom journal I've been keeping for the last few months. The neuro glanced at it and that was all. She wanted to keep it but I made her give it back cause I knew we'd be asking for a 2nd opinion after yesterday.

MRIs were with and without contrast.
Well, got my referral... have to wait till the end of July, but hopefully some answers will come then.

Have had a few really bad days (lots of pain, falling down cause my feet "disappear", facial twitching and numbness, and severe fatigue). Hoping this 'episode' ends soon and I get at least a couple weeks of normalcy.
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