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Old 06-03-2013, 09:03 AM #11
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The year I was d'xd (2001) I lost my mum (cancer) my dad (hear attack) I lost my job (because I was so tired, forgot stuff and was generally not a good employee - although the customers loved me - even if my boss didn't like the way I walked, or that I was tired a lot and forgot stuff). Then I crashed my new car - not my fault, but my six year old daughter was in the back - luckily no major injuries for either of us, but $17,000 damage to the car.

Less than two years later, my son was diagnosed with Asperger's syndrome, a routine MRI found that I had a brain aneurysm, which resulted in open brain surgery, a craniotomy, and huge steroids because I have ITP as well as MS and a very long recovery.

So, guess what? Lots of emotional stuff, lots of easy tears, lots of 'emotional lability, moods swings, tears, anger etc. You know what? I still have those feelings today, although not near as often.

I told myself to 'toughen up' and stop being such a sook. I am sure my husband did (and still does) think the same way sometimes.

Looking back, I probably had every reason to be teary - if it was one of my friends, I would dispense all kinds of advice about being kind to ourselves and not to have unreasonable expectations.

So, my advice, no one wants to be labelled as being weak, and no-one seeks to have it on their resume. It just happens, it is life and you have to accept it, deal with it, and be a better person because you DO give a d@mn - about you and the people around you.

Living with a chronic disease and coping with all of the challenges and fears that it presents is hard. Look for, and accept help, there are reasons for everything, whatever you may be feeling now, there are lifelines and help available, Don't be scared to seek it out.
Just my thoughts.
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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Old 06-03-2013, 10:35 AM #12
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Lynn - hats off to you. You are a strong woman.

Years ago when diagnosed, the neurologist called my GCP to let her know. She called me. I ended up crying at her kindness and concern and apologized for it. She said "You have the right to cry."
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Old 06-03-2013, 12:06 PM #13
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Nuedexta is quinidine and dextramathorphan. The combination helps strengthen the connection between the frontal lobe and the emotional center in the brain.
It helps keep me from overreacting or laughing when in a sad situation or sobbing when playing fun games with the adult kids.

For instance, I was once in a job interview at a publishing house, interviewing for an editor assistant position. the owner was showing me a book about a mother's journey after her child died. I suggested she should pair it with a journal for purchasers to use...and began sobbing.
Needless to say, I did not get the job...

Another time, we were playing Catchphrase and one of the kids misunderstood the word she was trying to describe. I laughed uncontrollably and then had to leave the room as I began to sob.

These types of over-inappropriate reactions are greatly reduced with the med...
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Old 06-04-2013, 10:30 AM #14
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Quote:
Originally Posted by GladysD View Post
I don't know what I'd do, if I had to give up, driving, either. If I were to get a case of optic neuritis, that never recovered, I'd be devastated, to say the least, obviously, with lack of vision, comes no driving.

There are, driving aids, for those who lack mobility. What are they called?! When someone has prostetic leg, I recall stories of still being able to drive, they have to place pedals near the steering column, to modify! See, may not be so hopeless!!

I mentioned to someone, once...I'd like to 'see' the World, while I could still 'see.' While we are young, I said, not later in life, when g-d only knows what my illness could bring. Menopause, looms, around the corner. That's when most women say their MS gets worse....

I get the crying. It really is, grieving, in many ways. Even, if, some of it comes with the 'what if's', reality is...this dx exists in this forum, where, it doesn't exist for sooooo many people. Being fine now, doesn't guarantee the future.

Well, I take it, the ladies are still planning to go to the fair in July? Maybe, they could have thought, what you mentioned about someone who drank and drive and is about to lose their license? They saw your vulnerable side. Let your ego, enjoy the fair then
I can drive with my legs and hands just fine, but I have trouble with dizzy spells and stuff like that and afraid someday I will have to give up my license because of it. It's not going to happen yet, but it just came up at the store that night and I let loose.

Yes, they are still going....I haven't been back to the store yet, but I doubt they'll not go because of my episode that night. Only one of them saw it, the other doesn't work there anymore. She lives about 50 miles away from there now and said she'd come to the fair with me... makes me feel nice.

I know they feel me because of my trouble I have with the "crap" but I also think they like me for stuff other than that....I'm cute, LOL, I ride my bike all over town(hopefully) I am a joker and prankster and I dunno.... I think they do feel a bit sorry for me and a bit sympathetic, but I think even without MS, I'd be friends with them. I mean they saw me in a slow, uneasy walk a few times, plus seeing my hands trembling on occasion. Sometimes I lumber around for words to say, and the fact I now have a handicap parking permit They know something's up with the crap I have and it's hard sometimes).

So yes, we'll be going to the fairXD. I can't wait.
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Old 06-04-2013, 03:42 PM #15
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I have PBA, dont take meds for it tho. Maybe I should but I hate taking meds and Im already on so many meds for other things. Im only 42yrs old and I had to stop driving 2yrs ago. MS took quite abit from me 2yrs ago but Im trying to push past that.
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Old 06-04-2013, 03:55 PM #16
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Old 06-04-2013, 06:32 PM #17
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Quote:
Originally Posted by KittyLady View Post
I have PBA, dont take meds for it tho. Maybe I should but I hate taking meds and Im already on so many meds for other things. Im only 42yrs old and I had to stop driving 2yrs ago. MS took quite abit from me 2yrs ago but Im trying to push past that.

I'm like you, I hate taking meds for every little thing.

That's what I'm afraid of....that one day MS will take my driving away for good.
I hate how unpretictable this crap is and yo unever know when it will do some real damage. Apparently it took a chunk over the winter when I got sick...I feel way less energetic now than just last summer.

Oh and.......
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Old 06-06-2013, 10:28 AM #18
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Quote:
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Yes, which came first, chicken/egg, emotions/ms? hmmm...for me, I feel I know my answer just writing that one out...thanks
Simply talking it out can help, as you've done here.

And people pay for such therapy!
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Old 06-06-2013, 01:46 PM #19
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Simply talking it out can help, as you've done here.

And people pay for such therapy!
I feel I've paid my fair share of co-pays, teheheh and sometimes, aha moments like these...that are priceless
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