FAQ/Help |
Calendar |
Search |
Today's Posts |
|
![]() |
#1 | |||
|
||||
Member
|
I've been on Ribif since the early part of April and I was wondering if this has made anyones MS worse than it was. It seems so to me, but maybe Rebif needs more time to work in my body. Ever since I've been on Rebif, I've had MS Hugs and alot of pain to go with it. Plus the places where I put the shots at are all red and sore
|
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Member
|
The 2 months I tried it, I hated it. Didn't make my MS worse but didn't help it either. However I know someone on it for years & they're stable so, good luck. Drink 1/2 gallon water per day.
Tecfidera is what you should try tell doc. |
|||
![]() |
![]() |
![]() |
#3 | |||
|
||||
Member
|
I drink about 1 to 2 gallons of water a day
![]() |
|||
![]() |
![]() |
![]() |
#4 | |||
|
||||
In Remembrance
|
I'd probably give it 6 months (If you can) and if it is not helping you
to feel better or to stop new lesions, then I would chuck it and try something else. Not all DMDs are for all peeps with MS.
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
"Thanks for this!" says: | GladysD (06-03-2013) |
![]() |
#5 | |||
|
||||
Member
|
Quote:
Quote:
Along with the upcoming MRI, will you neuro also have bloodwork done, to test your blood levels, too? |
|||
![]() |
![]() |
"Thanks for this!" says: | SallyC (06-03-2013) |
![]() |
#6 | ||
|
|||
Junior Member
|
I think it can take 6 months for the meds to really take affect like Sally said.
When i started Avonex, I had a terrible time after the shots, it actually made a lot of my symptoms feel worse, especially my vision and the pain. I think the vision was from the fever I would get about 4 hours after the injection, and the pain was the flu like symptoms. Would be in some weird spots like side of my ribs, spots i never had pain before. Such problems have subsided since i stopped having side effects, but like others have said sounds like it can be the MS hug. Take it up with your Neuro when you see them. The injection sites can be having a reaction where they are red since Rebif is administered just under the skin. Hope everything gets better for you! |
||
![]() |
![]() |
"Thanks for this!" says: | SallyC (06-03-2013) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Can using oxygen make PCS worse? | Traumatic Brain Injury and Post Concussion Syndrome | |||
Does Rebif make you feel weird | Multiple Sclerosis | |||
Things that will nearly always make MG worse? | Myasthenia Gravis | |||
Can caffeine make PN worse? | Peripheral Neuropathy | |||
Does Your Period Make It Worse? | Myasthenia Gravis |