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Old 06-07-2013, 07:48 PM #1
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Default Vent, breakdown, IDK....

Im so sorry to do this again, and so soon to boot! I started a new med, and I thought it was working, but no, I was wrong, again! My pain is off the charts the past few days and the meds are not working! My spastisity and nerve pain are making me miserable. I can only get maybe 1-2 hours of sleep at a time before the pain will wake me from a drug induced sleep.

Ive got spasms going from mythigh to my shin to my ankle into my foot, a muscle in my forearm is permanently tight and constantly in pain, my hands are constantly trying to curl into fists on me, my hands are in extreme pain from nerve pain and so many places are a painful numb (if that even makes sense!) Ive been taking lortab's for the pain, taking topamax for the nerve pain and baclofen and tizanadine for the spasms.

Dear God, bless my mini pharmacy and please help it work! Im getting worse rather than better. My walking is worse. My hand writing is way worse than ever. Half the time, my brain can tell my hand I want to write something, but the signal to actually do the writing doesnt come across and all I can do is hit the pen on the paper, and then my dh has to do the writing .

I am having extreme difficulty talking. I am stuttering, forgetting how to say words. DH and I play a kind of cheraids so he can figure out what the heck Im trying to say to him. OH, and talking on the phone to my dd is a trip. You ever play cheraids over the phone?? DH has to get in on it so he can tell her what Im trying to say to her!

Im finding myself not caring too much what happens to me from day to day anymore. DH says "dont you want to fight this anymore?" and I say no, not really. 21 yrs of fighting, Im kinda tired. I need a smack of reality or something. I know I have alot to live for, but Im having a hard time seeing it right now. I have a huge family, lots of aunts and uncles, 3 kids and tons of cousins and the only ones who are concerned about me? My dh and one dd.

Thats it... no one else. Not that they are not important, thats not what Im saying at all! I go to bed each night telling God that if He sees fit to take me tonight, I wont fight Him. For those questioning, YES, Im on anti depressants. They were just upped a few months ago at my recent dr appt.

I know there's folks that have had this longer than me, and worse. I think Im in a funk, and I just cant crawl out. I guess Im looking to my MS family for help. I get like this at times, and I need the eyes and hope of others that I have misplaced of my own. Thanx for being here and listening.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 06-07-2013, 08:53 PM #2
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(((((Kittylady))))). Sounds like you are on the wrong AD. I've
been there and it's a funky awful, unnecessary place to be.
My Neuro was a Neuro/Psych and he helped me find the
right AD for me.
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Old 06-07-2013, 11:54 PM #3
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Praying for you. Wish I could do more, I hope they get your meds right soon. I think you need to get in touch with your doc and tell them this.
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Old 06-08-2013, 10:23 AM #4
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Kitty-

I feel so badly for you! Sending the evermost gentlest of hugs your way and offering up a quiet prayer that you find relief - and FAST. I agree with Sally - it sounds like that the anti-d is not the right one for you (at least anymore). I encourage you to find the will to demand your doctor investigate this.

When life sucks, know that we care
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Old 06-09-2013, 09:32 AM #5
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Is a Baclofen pump a possibility for you? Getting Baclofen, about the most popular spasticity med for a reason, directly into your spinal fluid. In my unprofessional opinion, it sounds like some of your pain, and certainly the spasms, tightness, and "fisting" hand are spasticity-related.

http://www.webmd.com/multiple-sclero...-baclofen-pump

They don't just to the surgery and hope for the best. It gets tested first by injection first.

I'm sorry you are having such awful pain.
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Old 06-09-2013, 10:00 AM #6
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I only have huggs for you, hun.....take care
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