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Finally got an arrival date for Tecfidera

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Old 06-19-2013, 10:05 AM #1
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Default Finally got an arrival date for Tecfidera
It's been 2 and a half months since this process began. What a hassle! You really have to stay on these people. I should be getting my delivery Friday, 6/21.

Delay after delay...they don't have my signature, yes they do...talked to the right people but didn't ask the right questions, goodness knows they aren't going to prompt...got a pharmacy, $2300 copay...back to right people with correct questions to ask...got another pharmacy, med is FREE til end of this year.

Don't let that "$10 copay doesn't apply to those on Medicare" scare you. Talk to MSActivsource and ask specifically for the financial assistance department. That was one of my biggest delays; didn't know I had to ask for that department.
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Old 06-19-2013, 10:42 AM #2
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Good luck Sparky..
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Old 06-19-2013, 11:02 AM #3
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Yeah!

Happy for you, Sparky!

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Old 06-19-2013, 02:45 PM #4
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Good Luck, Hope all goes well for you!!
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Old 06-20-2013, 11:14 AM #5
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Sparky- I am doing the Snoopy happy dance for you and also thanking you for the advice re: Medicare

persistence pays off once in a while, eh? Good for you for figuring out the unneeded delays!!!
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Old 06-20-2013, 12:24 PM #6
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Glad to hear it!
Week 2 for me on Tecfidera......so far so good! No issues so far.
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Old 06-20-2013, 04:28 PM #7
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Great news.. hope it works well for you.
Just got blood work done today and signed papers to start the ball rolling for me.
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Old 06-21-2013, 09:03 AM #8
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Were you able to get help using my experience, Jane? Oh, that's great! That's one reason we are all here.

Today's the day. *tapping fingers* My Ampyra comes today also. It would be sweet if they both come from the same delivery company. But not my kind of luck.
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Old 06-21-2013, 09:36 AM #9
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My Neuro really wants me to try this med. I need to do some research on it but it sounds like it might be a winner. Judging by how long it took some of you to get it I'd better start now!!

I hope everyone has great results with this. It's about time they presented something that will work.
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Old 06-21-2013, 09:41 AM #10
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In my search for more info I happened across this blog of Wheelchair Kamikaze! It talks about BG-12 and PML and other things.

http://www.wheelchairkamikaze.com/20...2-and-pml.html
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