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06-23-2013, 01:15 AM | #1 | ||
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New Member
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Hi,
I am new here and I do not know if I even belong here. I have myasthenia gravis (mg) and my neuro suspects a second autoimmune disease because of my symptoms which are not common to mg. In January I had a migraine that sent me to the ER. Since then I have had sever right eye pain, pain in my hand in the beginning, but this has gone now, but I have pain in my right foot. Sharp stabbing pain usually. Sometimes it is numbness or hot/cold, but lately it is just very short pain, when I get up and stand on it, it feels like I am standing on a rock. I have had a MRI which was negative. My lp came back with o bands in my csf, I do not remember the number, but indicated a moderate amount that would say I have MS. The only thing is I also have a High amount in my blood serum, almost 1900, and normal is around 1600. My neuro says then I do not have ms because if it was ms it would only be in my csf. I am neg for lupus, sjogrn's, lyms, and everything else under the sun. I have a very unsteady gait, which I almost fall daily. Even as I write this, I am having right eye pain, burning sensation on top of my right foot, and pain on the bottom. Another things I have noticed real recently is I am having a hard time forming my words. I do not know if this is my mg or something else. What I am trying to find out is if any of you have o bands if both your csf and in your blood serum. I have done some research through my University online and I does seem possible if you have them in your csf that you can have them in your blood. I would love any input anyone could add pleasse. |
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06-23-2013, 06:06 PM | #2 | |||
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Member
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Hi. Only help I can offer is my CSF results & yes I certainly have MS.
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06-23-2013, 06:12 PM | #3 | |||
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Member
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And actually, have You viewed MRI? or just going by what "they" said? Get your MRI on cd from local that performed it & start studying.
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"Thanks for this!" says: | SallyC (06-23-2013) |
06-23-2013, 07:01 PM | #4 | ||
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Senior Member
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Welcome to Braintalk, Nummynow.
I hope you get answers so you can get some help w the pain. Best to you, ANN |
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"Thanks for this!" says: | SallyC (06-23-2013) |
06-24-2013, 01:04 AM | #5 | ||
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New Member
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Thank you for sharing your results. My results almost identical, but my serum was higher and the interpretation said the same thing. Currently, I am having severe pain in my eye and foot, I have fallen twice today. I am just so frustrated. Plus having MG does not help.
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"Thanks for this!" says: | SallyC (06-24-2013) |
06-24-2013, 01:06 AM | #6 | ||
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New Member
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I have not receive my MRI on a disc and looked myself. Although both myself and my husband are both medical I do not think I can read a MRI or know what a lesion on my brain or spine would look like. How would you do this?
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"Thanks for this!" says: | SallyC (06-24-2013) |
06-26-2013, 12:14 PM | #7 | |||
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Member
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I know nothing about MG but if your results look like mine, please get your cd tomorrow. You'll learn the program as did I.
I have lots of scans here & would be nice if everyone would post them in same thread. http://neurotalk.psychcentral.com/thread177183.html |
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"Thanks for this!" says: | SallyC (06-26-2013) |
06-26-2013, 03:55 PM | #8 | ||
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Member
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Hey I hope you're doing okay. Hang in there. Iive been having issues too that aren't classic MG symptoms (which I have had since 2007). My spinal tap was fine and so far one set of MRIs were clean. I actually took Eddys advice on here and uploaded my MRIs. I just received more MRIs on a better machine on Monday and truthfully nothing stands out to me with the exception of a black spot (hole) near the occipital lobe. I have been having vision problems in both eyes, but not pain just waviness, and brain fog. Hang in there. People on Neurotalk are pretty awesome for support. I don't know if I have MS as everything points against it, but I have some pretty scary unexplained neurological stuff going on too and everyone here has been supportive.
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"Thanks for this!" says: | SallyC (06-26-2013) |
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