[Nummynow]

Hi,
I am new here and I do not know if I even belong here. I have myasthenia gravis (mg) and my neuro suspects a second autoimmune disease because of my symptoms which are not common to mg. In January I had a migraine that sent me to the ER. Since then I have had sever right eye pain, pain in my hand in the beginning, but this has gone now, but I have pain in my right foot. Sharp stabbing pain usually. Sometimes it is numbness or hot/cold, but lately it is just very short pain, when I get up and stand on it, it feels like I am standing on a rock. I have had a MRI which was negative. My lp came back with o bands in my csf, I do not remember the number, but indicated a moderate amount that would say I have MS. The only thing is I also have a High amount in my blood serum, almost 1900, and normal is around 1600. My neuro says then I do not have ms because if it was ms it would only be in my csf. I am neg for lupus, sjogrn's, lyms, and everything else under the sun. I have a very unsteady gait, which I almost fall daily. Even as I write this, I am having right eye pain, burning sensation on top of my right foot, and pain on the bottom. Another things I have noticed real recently is I am having a hard time forming my words. I do not know if this is my mg or something else. What I am trying to find out is if any of you have o bands if both your csf and in your blood serum. I have done some research through my University online and I does seem possible if you have them in your csf that you can have them in your blood. I would love any input anyone could add pleasse.

[EddieF]

Hi. Only help I can offer is my CSF results & yes I certainly have MS.

[EddieF]

And actually, have You viewed MRI? or just going by what "they" said? Get your MRI on cd from local that performed it & start studying.

[ANNagain]

Welcome to Braintalk, Nummynow.

I hope you get answers so you can get some help w the pain.

Best to you,
ANN

[Nummynow]

Thank you for sharing your results. My results almost identical, but my serum was higher and the interpretation said the same thing. Currently, I am having severe pain in my eye and foot, I have fallen twice today. I am just so frustrated. Plus having MG does not help.

[Nummynow]

I have not receive my MRI on a disc and looked myself. Although both myself and my husband are both medical I do not think I can read a MRI or know what a lesion on my brain or spine would look like. How would you do this?

[EddieF]

I know nothing about MG but if your results look like mine, please get your cd tomorrow. You'll learn the program as did I.
I have lots of scans here & would be nice if everyone would post them in same thread. http://neurotalk.psychcentral.com/thread177183.html

[strizzlow20]

Hey I hope you're doing okay. Hang in there. Iive been having issues too that aren't classic MG symptoms (which I have had since 2007). My spinal tap was fine and so far one set of MRIs were clean. I actually took Eddys advice on here and uploaded my MRIs. I just received more MRIs on a better machine on Monday and truthfully nothing stands out to me with the exception of a black spot (hole) near the occipital lobe. I have been having vision problems in both eyes, but not pain just waviness, and brain fog. Hang in there. People on Neurotalk are pretty awesome for support. I don't know if I have MS as everything points against it, but I have some pretty scary unexplained neurological stuff going on too and everyone here has been supportive.