What were you very first MS symptom(s)?


Then how long after that did you get the dx for ms?


Thanks!

Facial numbness, 50 years ago. DXed 13 years later.

When u say facial numbness, was it the whole face? One side? Or just a line down the face?


Sometimes I get the sensation that a spider web is on my face from my eye to cheek. Does not happen often though

Hi Midori, that's actually not a simple question in my case.

Probably my first symptom was an area of numbness, maybe 1.5" in diameter, around my upper lip/cheek/nose on the right side. It was diagnosed as a mild neuritis, it went away after a week or two, and it never occurred to me that it was a symptom of something else.

A few months later I had what was diagnosed as mild trigeminal neuralgia. Again, it only lasted several days, and neither I nor my doctor connected the two, though he said he'd refer me to a neurologist if I wanted, or if it persisted.

When I went back to the doctor two or three years later, my concerning symptoms were extreme fatigue and "slow-motion brain". The earlier neuritis and TN never crossed my mind as being related.

In retrospect, I had balance issues, fatigue, muscle spasms years earlier. Were they symptoms of MS? Or just stuff that's common to most people? I'll never know.

I was diagnosed maybe four years after the neuritis, give or take.

Gosh, I had symptoms back when I was in my 20's (I'm 52 now). Had no idea what it was but they went away so I ignored them.

Dizziness and balance issues were first. Tripping over nothing. Then twenty years (or more) later both my legs went numb. I could still walk just felt like my legs were asleep.

The final straw was a severe case of double vision. That's what got me to the Neuro and ultimately got me the MS diagnosis.

It cleared up after several months and I haven't had it again but I have had ON and my balance/walking issues have gotten much worse.

A really bizarre type of dizziness, off balance feeling in 1989.
Diagnosis in 2002

Extreme Fatigue growing up - Everyone told me I was lazy etc...Tense all the time as well. But the major thing that started me going to the doctor was double vision while driving back in Feb. Then I was diagnosed in april

Numbness on the top of my right thigh and right hip, then total numbness on right side, almost like a line was drawn down the middle of me. I had drop foot and couldn't move my fingers very fast and had trouble lifting my arm. That all returned but then I had Optic Neuritis right after DX, that was all when I was 27.
I was DX within 3 months from the start of symptoms but I think that is because I have a brother that also has MS.

In 2005, I noticed that my great toe on my right foot was numb. When I was at the podiatrist for something else, I mentioned it...he sent me to my pcp, who sent me to a neuro...and the journey began. That was in 2005, and with increased symptoms, I was dxd in Nov. 08.
But after ruminating, I feel I was having sxs for years before that. Balance issues, fatigue, bladder problems...I put it all off to fibromyalgia. They mimic each other so well

I woke up one morning in July 2006 and both of my legs from my hips to my toes were completely numb...I could walk fine, however I felt like I was full of novacaine!