NeuroTalk Support Groups - Spider web feeling on face MS symptom? Or pinched nerve?

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- - Spider web feeling on face MS symptom? Or pinched nerve? (https://www.neurotalk.org/multiple-sclerosis/191463-spider-web-feeling-ms-symptom-pinched-nerve.html)

Quote:

Originally Posted by applewine (Post 1144961)

I may have what you guys are talking about, but have never been diagnosed with anything specific.

I feel like numbness on my face below my eyes and around my cheeks. It feels tingly and numb or droopy.

It will only last a few seconds or minutes. It seems to come and go with posture and movements.

I also have chronic myofascial pain syndrome in the neck, upper back, right hip / lower back. Jaw muscle pain, temple muscle pain, tinnitus, vision shakes all around when reading / panning on things close up.

Also sometimes I get wet water sensations all over my body. A lot in the feet. I can also get burning or stinging sensations all over my body which seems to
happen sometimes after an upper respiratory infection. I also had partial numbness and burning in my feet, but that went away. I just get a water sensation in my feet now when my foot rubs against the shoe.

Most of the neurological sensations like the water and burning started after I tried treatment for Borrelia and Bartonella infection from a not proven test, treatment or doctor.

That is when the neuropathy stuff started bad with the burning and cold water

sensations. However, years before that I did have a cold water running down the legs sensation that would happen a lot that lasted a year.

I've had brain MRI's and they said it isn't MS or anything they could detect. Skin biopsy was negative. All blood tests negative.

I have MS and my MRIs are normal,

MRIs can be inconclusive, fancy term for 'doesn't show it'. LPs too, when looking for O bands. And strickly a brain mri doesn't mean you don't have lesions. MS lesions can appear in the brain, the spine or both. Usually appearing in the brain but that's not always the case.

So you could be suffering from some other neurological disorder, either a CNS disorder or a PNS disorder (in the central nervous system or in the peripheral nervous system) or it could be MS still. Be prepared for potentially having an EMG to rule in or out a PNS disorder, an LP to look for O-bands or signs of inflammation, and/or additional MRI of the spine. It can be a long process, but hang in there, eventually it'll be sorted out :hug:.

Quote:

Originally Posted by BBS1951 (Post 1144972)

I have MS and my MRIs are normal,

What symptom did they diagnose you with MS based on? I don't have the key symptoms they would diagnose MS based on, but I do have a lot of weird stuff.

My neurologist said I don't have any symptoms of anything he knew of and thought it best not to subject me to any more tests after years of MRI's and other tests from other neurologists prior to seeing him.

A lot of people with these symptoms among other symptoms are pushing this idea that it is some very hard to detect or cure infection from ticks.

For that reason I do support the release of a tick infection antigen panel. The health department has had no interest in preparing this panel and it has been an ongoing fight from patient advocacy organization which seem to focus on everything but releasing this panel which would tell us the facts. The technology already exists, so only a few million dollars are needed I'm told to prepare the panel which could then be used world-wide. It is the nano-trap antigen technology if you want to search it.