![]() |
another thought
Right around the same time I took the levaquin, about a month or so after, I also had a bout of angio edema, my face, tongue, lips swelled up and I had huge purple raised rashes a number of times. Was in the ER quick for it. They attribulted it to a bug bite, but I never had a bug bite. So again, something was going on for a number of months. Doc. put in the records, spontanous angio edema. Read the article you put up, and it really makes alot of sense to me now. ginnie
|
Quote:
This is most common in those with Marfan's syndrome. But there are other genetic conditions that can affect tendon strength. I know a young woman who had a tendon dissolve in her ankle. She was around 25, and inherited Marfan's. Her mother had it too. |
Hi MrsD
I will ask doc about Marfan's syndrome. These tendons of mine never healed right at all. Needed tendon transfers but they were afraid to do all that surgery (achilles tendon also) because of my PN. So I limp around if I do too much walking. Don't know anything about my genetic background as I am adopted. I do have multipal auto immune conditions as well. Right foot not as bad, but has issues. I just wish like so many do, that there was a definative answer for why all the pain. Will look up this Marfan's and see if there is some kind of connection without getting all bent out of shape.
Hope your vacations is great. You do so much for us here. Enjoy yourself. ginnie:hug: |
Marfans
Only things that sound like it relates to me is, reversed the curve of my spine, tendons ruptured, and I have flat feet, and extreme overpronation. Other symptoms don't seem to fit. Heart is in good shape, had ekg when blood pressure was high. Wish I had my genetic history. Both my kids had some issues as well. ginnie:hug:
|
Quote:
My PCP is useless at this point. He's given up on treating me, but I have an appointment with a neurologist in August. I'm not expecting pleasant results one way or the other. I'm more or less defeated that something so minor as chest pain has led down this road. |
All this info about antibiotics is very helpful, and I've made a note of mrsD's list for future reference.
Worried, you need to be checked out, and soon. I'm sorry your PCP has given up - s/he needs to be replaced with a proactive medical professional. Giving up on a patient with symptoms like yours is very unprofessional. When in August is your neuro appointment? Early, I hope. Your situation is shouting for attention. |
Quote:
She thought the medicine was lower on the list. I'm becoming more and more concerned with my ankles. They are vibrating nonstop now and have been for 2-3 days. It went from never to sometimes, to every 30 seconds, to nonstop. My appointment with the neurologist is the 12th. Still quite a ways off. I've given up hope of curing anything to be honest. |
It can be very frustrating. Some of our PN members have been to 10 or more doctors!
I am leaving for my vacation in a couple of days and won't have easy access to the net for 5 weeks. You might try finding an integrative doctor, as they typically approach problems in a more global way. Sally at PN uses one with great success. She had a antibiotic reaction too. Search "integrative doctor + your area" in the keyword and some sites have referral suggestions. Another word is holistic. I'd avoid the naturopaths for now, as they are not medical and cannot focus on the MS possibilities. I wish you the best, until my return. Try not to stress too much as stress makes nerve pain worse. And try to take any pressure off those ankles. I'd avoid exercise or vigorous stretching for now a while to protect those tendons. Some people with nerve pain find swimming and water exercise very helpful. |
Quote:
When will you be getting them? |
Also in the meantime, since up to 70% of Americans are low in magnesium...
There is a nice new lotion called Morton's Epsom lotion, which is very inexpensive and very very good for nerve pain. I get mine at WalMart= $5.98 for 8oz. Apply a quarters dollop on each wrist, and inner forearm on intact skin (the skin is thin there and blood vessels close to the surface). Do not slather it on like moisturizer. A little goes a long way. Magnesium blocks pain receptors called the NMDA receptor. It is also used in the membranes of the mitochondria to enable fuel (glucose and fatty acids) to enter them and be oxidized into energy. Many of us on PN use this now, as it is easier than oral supplements. http://www.mortonsalt.com/for-your-h...-epsom-lotion/ This is what the bottle looks like and it is in the first aid section of the store. It is also on Amazon.com now. You might find this very helpful to take down some of your burning. You can use it on your ankles too. For me it is nothing short of miraculous! You will sleep well at night too! |
All times are GMT -5. The time now is 02:00 AM. |
Powered by vBulletin Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.