Last night we were at a friend's house, I missed a step, started loosing my balance, DH caught me but I injured my foot a little (bruised and lost skin as I was barefoot). I asked DH a couple hours later how he thought my balance was, and he said "challenged". Sigh. I'm glad he was there because if he wasn't, I would have ate it right into a rose bush.

So I know this is going on. Sometimes I get up from sitting and look a little like a weeble wobble until I get my bearings. I do not have vertigo or feel disbalanced in my head. I just feel like my body isn't cooperating. And I think I mentioned somewhere before, I feel like I'm being pushed down sometimes, my body wants my pelvic bones to be a few inches closer to the floor while walking, or somebody is kicking me behind my knees, or the rug is being pulled out from under me.

My pain doc's office called me yesterday to say they're going to send a referral to UCSF's MS dept as I asked them to do, so that's good. I'm glad I called that dept instead of waiting for my appt in Sept for the regular Neuro appt. I should be talking to them to make the appt today or Monday.

Sunday is this event in town where there are a ton of bands performing on people's "porches" (or driveways, etc). Ideally DD and I were going to hop on our bikes and see a bunch of them. I really want to see both a ska band and an irish punk band. The houses hosting the bands are all like a block from each other, totally invading town. I hope I can pull it off, I don't want to drive a block at a time. I've been looking forward to it. I'm going to have to rest all day Saturday so I can do this. It's so important to do thinks like this with my DD.

Oh those dang bushes! I don't what it is with bushes but I've fallen in to them more than once. I am glad your DH was there and caught you and that you are ok. Balance issues are not fun and I totally get having to wait after sitting for your body to coordinate. Once the messages get to where they're supposed to go I do ok.

Have fun on Sunday!

Hope you have a great time!!!

Although I have balance and vertigo issues at times the hardest thing for me to learn was to slow down and think. My brain doesn't seem to have much trouble sending signals, them getting there in a timely fashion is a completely different story.

I'm Paul, I fall!

Chaos, sorry for your fall. Glad DH was there.

BTW, Weebles Wobble, but they don't fall down..

i'm glad you're seeing the neuro soon.
you might consider a cane to see if it can help.

when i first started to use mine it felt so foreign. i hated it. but soon i got used to it and now i can't walk without it, especially around people. i'm fine in my house but outside, nope. but, i CAN walk, and drive. so, it's a good thing.

So sorry to hear about this - having nearly landed myself in both a rose garden and a cactus patch (at different times).

I hope it all goes ok - sounds like lots of fun if you can pull it off. May I be so bold as to suggest investing in a set of training wheels if you are biking though???

Big hugs - it really bites when it stops you doing things you really want to do.

Hi chaos,

You have a diagnosis of MG correct? From my limited understanding of MG muscle weakness is common. Muscle weakness could very possibly be part of the problem with you falling/almost falling. Have you spoken to the Doctor that treats your MG? If not that might be a good idea


http://www.ninds.nih.gov/disorders/m...nia_gravis.htm

http://www.mayoclinic.com/health/mya...CTION=symptoms

Same here. I'm getting used to it now, even being young looking(38) and wondering if people are thinking I am faking it Yes I can walk without it, but I have stumbled many a time in public without it. it gives me an extra point and something to help keep me in a better walking line(I tend to walk left for some reason)

I know some say using these devices is giving in to the disease, but for me bashing my noggin in, is a far worse scenario. Plus it lets people know that I do have some problems and people help me out more than when I didn't use a cane. I keep it in the car always for times I feel I really need to have it.

Paul, that's it for me, too. If I slow down and think where I'm putting each foot, I don't fall. I haven't fallen since 2010 when I got enthusiastic about going down some stairs because I was going out to dinner with some friends I really liked.
I haven't lost balance much, but in June and early July boy was I unbalanced due to breathing forest fire smoke. Two years ago the forest fire smoke made my eyes spasm back into my head and brought on episodes of ten minute blindness. When I lost balance I REALLY lost it, having to go down a hall by running into the right wall and then into the left wall. My pcp told me to get out of town until the smoke abated. That cost a lot of money for travel and motel. Right now it seems that didn't really happen because I'm upright again. But it did happen. How to live in a place that gets smoked out every year?

A cane helps me, and I have one in my car, but I'm afraid of losing it if I'm on an errand where I have to think about something more than hanging onto the cane. I don't do multiple tracks any more. Focus or else.