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Before I was DXed with MS - I could not sleep past midnight. I had to sleep. After getting DXed with MS, I would sleep for 10-12 hours, way longer than before. But in the last few weeks, I've noticed that I'm sleeping less and less. Very rarely I sleep during the day - and sometimes I don't sleep at all until 7-8am in the morning, then sleep until 12-2pm in the afternoon, then won't go to bed until 12am-1am. Is it normal for MS'ers to have sleepless nights - I have to say though, I haven't slept yet and its almost 5am, I feel a bit tense, but not hurting as much.
I feel somewhat peaceful, tired but not ready to sleep. I guess what a lot of people without MS don't understand, is that ppl with MS really have to listen to their bodies a lot more often. That's what I've had to do. I usually take meds when I do get up from sleeping, even if I'm not hurting, just to get something going in my system for later on. I'm starting to help my grandmother a lot more around the house, she just lost her job and we are in need of a finanical miracle now. Just keep us in your prayers about that if you will. We are hoping to have a yard sale Saturday to try and get some bills paid lol - and I do computer graphic design for fun, and trying to do it for a living as well. I want to thank all of you for helping, encouraging me on here. I think this forum has helped me more than any other outreach online I've reached out too - to be honest, I don't go to any other MS forum except this one. I'm glad to say I only have 17-18 days more to go before I finally go to the MS Clinic. I have 8 pages of my MS journal to show them. I have kept a log since Feb that has detailed every pain, symptom, dr visit, complaints, everything - I'm assuming I will be having another MRI done possibly. Another thought is that my dream job is just to work from home. My social life is the internet if you will lol. I communicate better through writing. MY thoughts flow more freely writing rather than speaking. I've learned that instead of trying to fix your entire life at once, if you just take one piece and fix it - then move on to the next, the process becomes a lot easier. Again thank you all for your support! |
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