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Old 08-03-2013, 12:48 PM #1
cdwyer49 cdwyer49 is offline
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Confused Arm and Leg Pain :(

In April I was diagnosed with RRMS. Since receiving the diagnosis, I have continued to have new symptoms on a weekly basis. My neurologist suspects that I may have a progressive form of MS as my symptoms never subside and I continue to have issues with to breaks in between. I feel at times it's a head game...am I being paranoid, am I being a hypochondriac, does it really feel like this?
I worry that it's not MS or that I'm mentally doing this to myself. I've always been a healthy person until now...

My newest symptom is intermittent shooting pains down my arms and legs combined with weakness. The shooting pains last only seconds but are frequent enough to cause me concern. The pains almost remind me of those "growing pains" I had when I was a child.

Is this a problem that others have experienced? I have another appointment with my neurologist on Wednesday. I'm trying to stay working as long as I can, but these pains and weakness continue to get worse and more frequent.
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Old 08-03-2013, 01:36 PM #2
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Hi cdwyer49. Welcome to NT/MS Forum.

I have had MS since I was at least 21 and I am now in my 60's. My sx come and go and overlap. Some go and never come back and some stay a long time or permanently.

There was a time when I just could not get out of a flair of bad symptoms and I was put on 1Gram of SoluMedrol IV a month for a year and haven't needed the steroids since- over 10 years.

Maybe you need something to break the cycle? Just thinking.

Best to you, ANN

Last edited by ANNagain; 08-03-2013 at 09:31 PM. Reason: error
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Old 08-03-2013, 05:31 PM #3
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Welcome to our community cdwyer49.

It seems that eveyone's MS symptoms are unique to them in some way. What you describe most certainly could be caused by MS as I have heard of others describe similar pain.

I think that Ann's advice makes sense and would be good to look into; perhaps when you see your neuro.
Wishing you luck and a good outcome with it.

With love, Erika
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Old 08-03-2013, 07:53 PM #4
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Welcome to the club, Connie. What you are experiencing is usual
stuff for MS. ANN may be right, maybe a dose of solumedro IV
would get you going again?

Are you on any meds right now?

Feel better soon..
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Old 08-04-2013, 09:53 AM #5
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Welcome to NT-and a club none of us subscribed to join...

Keep a symptom journal and keep up on researching your symptoms, without getting obsessed the way most of us did when we began our journey to diagnosis...try to live the best life you can despite the symptoms. It can be a literal and virtual pain, but keep on moving is the mantra, and it's best to follow it.
Keep us up to date...
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Old 08-04-2013, 11:00 AM #6
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Hello cdwyer49 and welcome to NeuroTalk

Quote:
The pains almost remind me of those "growing pains" I had when I was a child.
I was diagnosed with MS at the age of 24 but symptoms that go back to childhood.

I had "growing pains" but mine started about the age of 14 or 15, long past the age of what is termed "growing pains." I had other symptoms of MS in childhood. Leg pain is one of those symptoms, for me, that can come and go or I can deal with it for days on end.

Leg pain as well as other types of pain are quite common in MS.

What I found after I was diagnosed is symptoms can take time to calm down and the first 2 years were quite difficult in the ability to adjust to my diagnosis as well as figuring out what was normal when having MS.

You were diagnosed in April which really wasn't that long ago. There is a misconception about the remitting part of MS. MS can leave you with residual (permanent) symptoms, symptoms that come and go and sometimes symptoms can completely resolve.

Remissions can be complete (no symptoms) or partial (residual symptoms, symptoms come and go). Both is normal.

Quote:
The shooting pains last only seconds but are frequent enough to cause me concern.
This is another normal symptom when having MS and can come and go. I am curious if you notice shooting pains when only bending your head down. LHermittes is when you bend your head down towards your chest and your can get sensations such as electrical shocks, vibrations/buzzing but they will only last seconds but can be repeated each time you bend your head down.

As hard as it might be when newly diagnosed or even after having this disease a long time, is to try and relax knowing your body is going to feel and behave much differently than what it did before.

Take care
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