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Old 08-15-2013, 11:12 AM #1
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Location: NorCal
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chaos chaos is offline
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Join Date: Jun 2012
Location: NorCal
Posts: 332
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Default Update after the MS doc

I'm kind of depressed because I got NO answers at all. She said I don't have MS per the MRI, but couldn't tell me what is actually going on at all. Nothing. She said I need to see a neuromuscular specialist. I told her I have an appt with one of her colleagues next month in the neuro dept and she said great. I asked her about the hand tremor, fatigue, brain fog, etc and she wouldn't give me an answer, just "I'm here to rule out MS". When I asked her about what else could be causing this she either wouldn't tell me or didn't know. At one point she mentioned my thyroid, but after talking about that she changed her mind and decided it couldn't be that either.

She did say there is still a small chance I have it, but I would be in the very early stages, and that we'd need another relapse and MRI with lesions before a dx is made. If it does turn out to be MS, something else will happen soon and then we can see.

I know she clearly noticed issues with my right arm. She'd ask me to do something with my hand, asked me to do it faster and I couldn't. She watched the tremor happen. She just didn't tell me what she was thinking.

What the heck?

Is this the way it is? I've read so many of you it takes years to get a dx. And if it's not MS, what is it? She even challenged the small fiber neuropathy dx. She said I need to get a skin punch biopsy done to know for sure. Um, so I'm just feeling this awful PN for no reason?

Here are my current symptoms:
Neuropathy - EMG was neg for large fiber, stocking pattern
Tremors in one hand, intention or postural
Speech issues - stuttering and pausing to find right word
Hearing issues - ear doc said it's an auditory processing issue
Stomach pain - can't eat much at once, it's upset a ton
Brain fog
Fatigue
Balance issues
Feet always cold
MRI is totally clean, even with my migraines
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