So today is unseasonably cool and I felt like I had much more energy!
After work and cooking dinner I had energy to plant four potted plants. It took about 30 minutes. After I was done and would stand straight my leg muscles began shaking. Feeling like I would not be able to hold myself up. An our later I am laying in bed and they are so sore and weak. I did not over exert myself!
I feel weak and fatigued so much that I love an opportunity to do something I really enjoy, but I end up suffering for it.

Trying to figure out why that sort of thing happens can make you crazy. A small physical exertion can result in major symptoms while other times a large physical effort goes off without a hitch.
Sometimes, it doesn't make any sense at all.

It seems that even when everything seems to be going relatively well symptom wise, the MS-thang has to interrupt that and do a little checking in; almost as if to say, 'Remember me? I'm still here."

It would be so much easier for everyone if the MS-thang would just get its own phone. Then it could just call up and leave a message...preferably in text because I don't do those .

Hang in there Cdi .

For what its worth I get those twitchy reminders too. Mine are not painful and that is always something to be grateful for. In my case, stretching seems to help the twitching go away and the weakness is a 'wait it out' thing.

With love, Erika

i'm sure you've heard of the spoons theory...if not, search on NT-it's been posted more than once here.
Our addled bodies and brains have only so much to give before things go haywire...even a small increase in body temp can cause problems.

Hope you're back to yourself

Ah yes, the old days, when I was younger and could over-do and
live to tell about it. I, too, had to learn, the hard way, to pace
myself. To do a little, rest a lot...do a little, rest a lot...And so
on....Grrrrrrrrrrrrr!!

Sally - This is me. I thought I learned the hard way but apparently not because I still overdo it all the time. But, I live to tell about it.

It does sound like you over did it. There is not warning that you are overdoing it. It is so random and doesn't make sense. It's hard to give tips and advice when it doesn't quite make sense. And, of course, I own the DeNile so advice from me would not be the best. On most days, I pace myself and rest when my muscles start to say they're getting bored with the activity. I don't always listen and that's when I cause myself some problems.

Agreed, it does not take much to wear me out. The last 2 months have been very rough. Wishing the cooler weather would hurry up so I can start to feel a little better! I used to hate the cold, now I cannot wait for winter. I try to pace myself, maybe I should have done only one pot and relaxed to see if I cold continue with another? I am tired of not being able to preform simple tasks.

Yes, it's all a matter of pacing...I tend to do as much as possible in the morning when energy levels are high-then pay the price later with increased spasticity and pain, along with that darn fatigue.

But if I pace myself I feel like a southern belle, sitting under a willow tree being fanned in the heat while I sip iced tea...it's difficult to give in at all to this stupid disease, but you'll last a lot longer if you do one thing, then sit and read or enjoy the day, then do another, rest, etc...

Don't forget that heat ramps up your symptoms...keeping a cool rag in the refrigerator or a supply of ICEES in the freezer helps get my core temp down quickly-in fact my neuro prescribed Slurpees in the summer

Reality hits the fan for most of us in the summer-stinks, doesn't it?

heat has been getting me too. One heat situation is when I "babysit' my grandsons in their parents' home, which has inadequate curtains and no air conditioning, not even a fan. Twice I've gotten prickly heat feelings around my midriff, and actually burning skin all over. I will not be able to babysit in the late afternoons in that house, at least until winter.

I have also had to start wearing black or dark clothing to keep out "visible light", but this comes from another illness, Porphyria. Of course wearing clothes all over, even thin synthetic ones, in dark colors, adds to the neurological difficulty. It's pretty frustrating.

Thank goodness I do have air conditioning and fans in my own home. I would not be able to do any housework or practically anything else without this. Our temperatures are only in the high 80's but the sun is fierce--whiter light than we used to have, may be related to the Coronal Mass Ejections we have had hitting us from the sun a few days ago. Usually the CME's do not hit but I read that those did hit.

I had some leg jerking some nights and had to take an extra calcium. I have to have calcium and magnesium both to control the jerking and spasm.

Ok, so I start to shake and twitch whenever I exert myself physically - or even emotionally (like if I get scared by something - or nervous) goes on forever (not really, but feels like it).

Not your average tremble, but full on shaking so hard my whole body moves and I can't stop it.

Interestingly, it is always my left leg that goes off, shakes, or collapses - and when I had my MRI last week my neuro was commenting about a spinal lesion I have developed and told me that a lesion in that specific place would affect my left leg.

So there you go...... exactly what I thought, but nice to have validation