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-   -   Tecfidera questions.. (https://www.neurotalk.org/multiple-sclerosis/195520-tecfidera-questions.html)

EddieF 10-21-2013 08:01 PM

Quote:

Originally Posted by KittyLady (Post 1023626)
Asap he wants a spinal MRI and he wants me to have the baclofen box inserted. I agree.

Kitty why the baclofen pump? Pills didn't work? I take 7 of the 20mg per day.

KittyLady 10-24-2013 06:27 PM

Quote:

Originally Posted by EddieF (Post 1023889)
Kitty why the baclofen pump? Pills didn't work? I take 7 of the 20mg per day.

My body seems to have gotten use to the pills and so they are not working as well. That's why he wants the pump. Im all for it. I'll try anything to get this pain to go away, even for just one day.

KittyLady 10-24-2013 06:28 PM

Quote:

Originally Posted by EddieF (Post 1023889)
Kitty why the baclofen pump? Pills didn't work? I take 7 of the 20mg per day.

Quote:

Originally Posted by ANNagain (Post 1023778)
KittyL,

I am sorry this did not work for you. I have forgotten your Medicare date- is it in Feb 2014? I wish you a peaceful early winter.

ANN

Yes Ann, its Feb of 2014

EddieF 10-24-2013 07:07 PM

Ok back to thread topic Tecfidera.
Kitty what was/is your WhiteBloodCount? How much did it change from start to end of taking Tecfidera?
Mine is now 11 from a constant sky high 15-17. I must say it IS working in that respect thank goodness.

KittyLady 10-25-2013 04:12 PM

My neuro never took my blood count. Said it was not necessary. I said I thought it was from everything I had read and from the FDA website and all, and he said no, was not necessary. I stopped because of all the side effects. Even with the preventatives to the side effects, I was still getting some of the side effects, so I said I had enough. It was my second time trying the drug, so it was a mutual NO between me and neuro.

EddieF 10-25-2013 07:58 PM

Quote:

Originally Posted by KittyLady (Post 1024685)
My neuro never took my blood count. Said it was not necessary.

I'll speak on behalf of i'll say most by saying your neuro is a bleepin bleep bleep. What an idiot.

Ask your regular doc to order a cbc monday.

KittyLady 10-27-2013 08:21 AM

I don't have a regular doc. I have no insurance so I don't being able to keep my neuro was a blessing. He only charges 75.00 a visit. Maybe I'll ask him for the blood test. Do you think it would really matter? I was technically on the drug for only a month. I was on for 2 weeks had a bad reaction then he took me off for 3 weeks then back on for 2 weeks and the same reactions even with preventative meds.

EddieF 10-27-2013 07:53 PM

Hi. Well, if it was me i'd want to know because i'm trying hard as I can to hold my MS level where it is for as long as I can, so any little bits of info are welcome. Curious if it effected your blood counts and how. Surprised your neuro wasn't curious as well..and you. I'd go for it if I were you. Test might cost same as a neuro visit. For your own piece of mind/info anyway. Maybe your count was low and made you feel poorly. Nice to know how all them cells are doing once in a while especially if weak, tired ect.

ed


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