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Old 04-30-2014, 12:39 AM #1
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Originally Posted by Erika View Post
This guy was internist (from another country), and all he could offer was to refer me on to a rheumatologist if I wanted that. They must give out medical licences there in Cracker Jack boxes .
When I was in the hospital, they gave me some medicine that is known to cause seizures. It was a last ditch effort for the bladder pain and issues I was having because of the surgery. So, one nurse was getting things ready in case I had a seizure since I've had small ones before. Another nurse was in there too and they were discussing the set up of the equipment. One nurse was trying to explain it to the other nurse and asking if it was correct or if she knew. Well, each room has a computer in it and one of the nurses goes over to look it up on the internet. So I told them, jokingly, that it really makes me nervous when my nurses are consulting Dr. Google. They both laughed. It was the image of the set up that they wanted.

BTW - The stuff worked fantastic!!! It's called B&O. It's belladonna and opium. It's very expensive though as they gave me a prescription for it after I was discharged. I had a hard time finding a pharmacy that had it on hand and when I did find one, my insurance wouldn't cover it and it was $300 for a 14 day supply. I didn't get it and just suffered through the pain and issue with a little oxybutynin.
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Old 11-19-2013, 10:39 AM #2
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I couldn't find a recent 'whine' thread so here's a new one.

Don't you just hate it when you turn in at the end of the day, with the body feeling relatively OK...only to awake a few hours later like it has been in a bad fight...with an alligator or two?

I honestly don't get it. Things were feeling "relatively" fine last night and only a few of the usual Sx, but severe leg spasms woke me up...or should I say my own voice moaning did.
The first words out of my mouth were "Holy****, where's the Baclofen?"

Did I forget to take it last night before turning in? No.
Yet, the body is spastic as all get out this morning, the hand joints are on fire, my head is pounding and there's a foul mood going on that isn't welcome to boot.

I sure hope that the MS neuro comes up with something tomorrow, because I'm about done with this roller coaster ride.

Cheese? I think that I could eat the whole platter...and down a bottle of wine along with it

With love, "The Crank"
Hey Erika....boy do I sympathize with you on that. I've been up before 4:00 a.m. three nights in a row. Not muscle spasms tho....I'm so sorry you are having that much pain. Its exhausting trying to figure out which drug when and how much. Anyway, hope the Dr appointment brings something useful to light! take care of yourself
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Old 11-19-2013, 10:56 AM #3
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(((Erika))) spasms are the worst symptom, IMHO…makes me miss Dr. Kevorkian…I never understood why MS patients were his number one patients…until my pain began. Makes me want to leave the planet, but then I wouldn't want to do that to my family.

Hope you're not getting the virus going around-it has symptoms that are flu-like.
But it sounds like all of your auto-immune enemies are ganging up on you…hope it all quiets down soon and leaves you feeling better...
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Old 11-19-2013, 12:23 PM #4
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I haven't had to whine lately, but I will be happy to join you in yours,
out oF sympathy and empathy for and with you..

Feel better soon please..
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Last edited by SallyC; 11-19-2013 at 08:19 PM.
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Old 11-19-2013, 04:23 PM #5
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I'm so doped up on Baclofen right now that I think that mistook one of my socks for a bun and ate it for lunch
Otherwise at least the spasms have settled down and the fingers have too.
Now for the headache...Hmmmm. I'm about ready to stick it under a cold tap and just let it freeze off.

I'm sort of wondering if it is a virus too.
There are a lot of sickies around these days and I did go into a grocery store the other day to pick up a few things. Looks like I may have picked up something that wasn't on my list. And I'm so careful about hand washing etc. I even wash or change the packages that products come in.

With love, Erika
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Old 11-19-2013, 06:29 PM #6
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I've never had worse pain in my life than the muscle spasms of my inner thighs. Not childbirth, not migraines, not surgery. I was scared to go to sleep. The quinine was working, but then they outlawed it. I'm taking baclofen now, and haven't had one of those bad spasms for quite a while, thank God.
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