Is that why my head hurts?? I take 3 baclofen a night. Don't use it during the day. I like to be awake during the day.

Yeah, sometimes it gives me a headache, but more dizziness and weakness if I take a high dose...or should I say a high enough dose to knock out some of the severe spasms that get going in the legs. Its a trade off...and I'd rather have the dizziness and weakness.

I woke up with this stupid headache though, so it wasn't likely the Baclofen. I've been alternating between laying with my head and neck propped up, stretching my legs and neck, and sitting outside in the icy cold air (that helps relieve the headache the best), for most of the day.
I don't have a fever, but my brain and eyes feel hot from the inside... KWIM?

With love, Erika

I had a bit of a break from some of the spasticity for the past couple of days, which I'm sure isn't going to last.

I had a dose pack of oral prednisone (methylprednisilone 4mg...about 6 days worth) Ironically enough, not for the MS, but for a shoulder injury. I think I tore my rotator cuff about a month ago. Pain had been steadily getting worse. To the point that I couldn't do anything at all because it hurt so bad. I can't take narcotics because they make me throw up. So they gave me the oral pred.

It helped the shoulder pain more than anything MSish. I have two doses left. One pill tonight, and another one tomorrow and then I'm done. The shoulder pain is already starting to come back. Just waiting for the MS symptoms to start acting like they're mad too.

I think I'll be upping the baclofen in the next couple of days. Not really thrilled with that idea. I hate spasticity.

My only whine lately is that my legs are so cold.

Why does the pharmacy run out of the meds I need? Why do I continue to use that pharmacy? Today I need to call around to get my Vyvanse refill on my lunch so I'll have it tomorrow. It will be perfect if Target has it because they are next to my work location. If so, they will be my new pharmacy I guess and hope they'll be able to stock it or have 30 pills when I need a refill.

Erin,
30 mg of Baclofen isn't too high of a dose if the body is used to it, although as you know, everyone is different. It might make some symptoms like fatigue, blurred vision, weakness, dizziness...and headaches worse. If I take a higher than normal dose, that's what it does to me; but I haven't noticed an association with headaches with it.

Doydie,
I'm wondering if the circulation in your legs may not be the best if they are cold like that. It could also be why riding the bike at the gym is causing some problems, like you mention in another thread.

Although heat is not a friend, I wear a light pair of long underwear under my track pants in the winter; even in the house, because I keep my indoor temperature between 55 & 60 F. The combination of low ambient temperature and the underwear helps to control some of the above mentioned symptoms and seems to take the edge off the neuropathic pain & foot numbness that I get in the lower legs.

Thankfully the headache has backed off quite a bit this morning and I got some good sleep in last night without the severe spasms waking me up. I was almost afraid to go to sleep, so it was really nice that they left me alone last night.
I do feel like I have a virus cooking though...sort of nauseated, dizzy and vision is fading in and out, but that might also be the Baclofen.

I'm hoping that everything settles down by this afternoon because one of the clinic associates is coming over so that I can help her set up her business bookkeeping and on-line billing.
When I can't go to work, work comes to me. Its a nice perk of being self employed .

With love, Erika

Erika there's a nasty virus going around-it starts off flu-like but is really a bad cold. The cough lasts for weeks afterwards…hope you feel better soon

My neuro told me I could take more than 80 mg of baclofen per day if needed. But he wanted my legs to be "al dente", not like a wet noodle where I wouldn't be able to walk. It was up to me.
He actually told me to take it every 2 hours so it's constantly in my system. So I did that yesterday and the spasms were much less intense. Sounds as if this continues I might wonder if I'm a candidate for a baclofen pump.

I agree with you that Doydie might have circulation problems in legs-better have that checked. When I begin exercising, my legs hurt from the spasms for about 4 minutes; then they ease up and I'm fine for the rest of the workout. The activity gives the muscles something to do besides be a bother

Pain after beginning a workout is thought to be from peripheral circulation problems…my leg blood vessels were checked when I was in the heart hospital and they passed with flying colors, as did my heart in an angiogram.

Pain can be such a bugger to figure out, especially when we have MS…some docs seem to throw the symptom into that can and not hunt for another cause. That's why we need to be educated health care consumers.

Uh oh, my insurance denied the RX of Vyvanse and they need pre-approval so I might be without if for awhile. I still have some Adderall XR left but Vyvanse works so much better. I hope they'll eventually approve it! It is apparently not on their list of approved meds for MS fatigue.

I'm sorry to hear that Wiz.

I ran into the same sort of thing here. Why is it that the meds that we need aren't covered...and are the most expensive? Oh...never mind. I think that I just answered my own question.

With love, Erika

I'm so darn sick and tired of the insurance companies practicing medicine.