Oh Sally, I am so glad you are ok sweetie. :hug:

Ok my big cheese has to do with my B12 shot. They gave me vials and syringes and I have never used anything but a pre-filled syringe. I couldn't get the medicine out of the vial and into the syringe, even after watching how to do it online. So I'll still have to go have the nurse give me the shot this week.

Wiz,

Try pulling a little air into the syringe and put that into the vial. That will usually allow you to get the fluid out of the bottle the first time. It also helps to warm the contents of the syringe in your hand for a minute before injecting; less of a sting that way :winky:.

With love, Erika.

WOW Sally. What a day. I have no idea how the device works but would turning off the car engine stop it? I sure hope the company who made it fixes it at no charge to you. One little question though. Were the paramedics good looking????:D that was nice for them to go home with you and make sure you got out OK.

Doydie, the Parameds didn't follow me home, my DD's BF is a Paramed and
he met us here at home..:). Thank you all for your concern. :grouphug:.

I'm doing a bit better today. The mental anguish is worse than the physical
pain in my butt.:D. The pain is diminishing and they just called to tell me,
there will be no charge.:) They're lucky I didn't sue!!!! If I were stronger,
I would. They almost killed me.:eek:

Erin, it's a dandy product. Anything can malfunction.:). That's why there
are so many recalls on stuff.:eek:

I be Fine!! How are all of you?:grouphug:

my bedroom has a door now...but my special hinges are nowhere to be found on the new door, or my bathroom. I'm a little worried he forgot the hinges that widens the doors.

really hoping the contractor hasn't forgotten the hinges. Kind of counting on those hinges to make the doors wider.


I just got my AFO adjusted, and sent off a left shoe to get an AFO made for the left leg. So glad that I saved my old sneaker from the last pair of shoes. It not only matches, but it gives me something to wear for the week while waiting for the new AFO to get made. I got new springs in the right leg AFO, and things feel weird. Trying not to trip while I get used to it having been adjusted.

The guy that runs the prosthetics place let me try the electronic gizmo thing on my leg to see if it would work. I was disappointed. The one he has in his office is the Walkaide. It didn't trigger the nerve. But, he said that the swelling that I have in my legs, and possibly the steroids that I'm on, were working against me. Something about the fluid from the edema can block the signals getting thru. Not sure what it is about the steroids that would hold it back.

I thought maybe it was the electrode pads that he was using to put it on my leg to see if it would work. I could feel the zaps, but it was like TENs unit zaps, and not very strong. I thought maybe he needed to put fresh electrodes on it to make it work. He didn't.


hoping that once my room is all finished, and I can get my bike set up, and start exercising, that I can get some of the edema to go down, and build up some muscle. I really think the edema is from not exercising.

Hopefully I won't need a Walkaide, or the Bioness electronic gizmos if I can do that. He told me the Walkaide is something like $5500. Which isn't what I saw online. I saw prices starting at $2500 for the Walkaide.

I miss my old insurance. My new AFO is all totally out of pocket for me now. That's $800. I have yet to meet the deductible. (not even halfway there) I just paid my physical therapy bill, which also was out of pocket. My poor credit card, and it's $2200 charge on it. My credit card is screaming for me to not spend anymore money. I have to behave now. Hope the MS will stop making me spend money for medical issues for awhile. Stupid higher deductibles.

I didn't know what "pass the cheese" meant, but now I do. It is what you ask for when you are mega-frustrated? I do love cheese, and I could easily eat it in a binge, but I don't dare, as it would really torpedo the Swank diet. I do eat 2% cottage cheese, even that is a stretch on the Swank, and an occasional little piece of Cheddar. I could live on dairy and bread. None of that dairy sensitivity or gluten sensitivity for me! But of course I don't eat a LOT of either. I had half a turkey sandwich on whole wheat bread with Pesto mayonnaise (canola base), tomato and cucumber, at the Natural Foods Co-op tonight coming home from an appointment. I adore Pesto mayonnaise, which I believe is made from the pine nuts which grow around here. I have a bunch of Pinons in my yard, which require constant watering due to the drought.
Sally, those automatic movers, whatever you call the thing which threw you into the dashboard, can be dangerous to pedestrians. Yesterday while in the supermarket, I was meandering toward an aisle when a woman on one of those was backing up in my direction. I guess she was turning around. When she got fully turned, she started moving precipitously in my direction. I backed up, step by step, backwards. It was rather difficult to do this fast enough, with my numb feet. She looked at me as if to say "You're normal, you ought to just get out of my way". I was laughing inside, but also saying a prayer of thanks that I managed to back up fast enough not to get my feet run over. She stopped just in time.

When I use the store scooters, I go really really slowly, because the Normals just do not pay attention. Kind of peeves off the Normals if they're behind me.

Was in Lowe's the other day, and a Normal person had a fit because as I was scooting past their shopping cart that they left parked across the width of the aisle, I reached out and moved the cart over as I went past it. How dare I touch their cart?! Like I wanted their Keurig machine, and the leaky bag of potting soil they had in their cart. (I already have a Keurig machine)


and on a non-complainy note...

Walking around with my right leg AFO all nicely adjusted, with new bouncy springs in the hinges. Walking is so much easier at the moment! I can now tell there is something actually going on with the left side. (I was hoping it was just the right side causing me to walk funny). With the thing all adjusted properly, I can feel my knee wanting to go where it's supposed to go, and not hyperextending. The left knee wants to hyperextend, so hope when I get the lefty AFO next week, that'll help fix that problem.

I also feel better right now, after the new physiatrist last week, AND the AFO guy today both telling me that I had excellent range of motion in my ankles.

When I get my dartboard hung on the wall, and can start using my dartboard for DIY PT, I'm going to see if I can do it barefoot. So that when I have to stand to throw, I'll be using my own muscle power for the standing, and the throwing stance. Hoping that I can keep that range of motion going.

I love that Erin, the Normals!!! Maybe they need to make a TV show called the Normals. Curious to see who they deem as normal though.

My youngest daughter is y guardian when I am in a motorized scooter in a public place. She doesn't go with me if I ever use one in a store since I rarely do but when I am on vacation or at our local big amusement park she is right there. Well actually she is about 2 feet ahead of me making sure there is no one ahead of me that I may run into since some people are totally blind to one of these motorized scooters. I mean at night I have the headlight on and sometimes I am using the horn but there are kids that re running in front of me, crossing my path. I am glad that once you take your fingers off the forward button that it completely stops. Of course that may make the person that is following me run into me. So my family really protects me, some one in front and some one in back and usually the grand kids on either side.

My mom always ends up with the scooters that don't stop on a dime. And she tailgates. When I've been walking in a store, I'm afraid to walk in front of her. I have scars from getting run over by her.

When we've both been in scooters, she still tailgates, and she insists on staying behind me. Drives me nuts!

Try to get her to go in front of me, so when she runs someone over, she gets blamed.

I can barely feel my feet, but if a scooter ran over my feet I could feel it, I am afraid. So I give scooters a wide berth. But that woman in the store the other day was driving so recklessly that avoidance became a non-issue. I just had to back up quickly. I couldn't have turned around quickly enough to run away from her without losing balance, I expect.
Usually I look like I have good balance, but in a challenge like that I would probably fall to the side. I am amazed how little I've fallen (not at all) since I fell down my nephew's stairs 3 years ago, and broke my patella. I am now super-vigilante and recognize danger.

I do find that my meandering walk, as one intern in a hospital called it where I worked when in college, is increasing. The intern who observed me said I should get checked for MS or other neuro difficulty. At that time it was the last thing on my mind....I had health problems but I was unaware of a "meandering walk". Then much later, when I had vertigo (not from MS but from "sand in the ear" syndrome) I was sent to a "balance physical therapist" to get my balance recovering after I was cured of the "sand in the ear" by a fancy maneuver. She also said my walk meandered, typical for MS, in her opinion, and she had MS. But she said I had compensated so well that she called me a "somatic genius."