I couldn't find a recent 'whine' thread so here's a new one.

Don't you just hate it when you turn in at the end of the day, with the body feeling relatively OK...only to awake a few hours later like it has been in a bad fight...with an alligator or two?

I honestly don't get it. Things were feeling "relatively" fine last night and only a few of the usual Sx, but severe leg spasms woke me up...or should I say my own voice moaning did.
The first words out of my mouth were "Holy****, where's the Baclofen?"

Did I forget to take it last night before turning in? No.
Yet, the body is spastic as all get out this morning, the hand joints are on fire, my head is pounding and there's a foul mood going on that isn't welcome to boot.

I sure hope that the MS neuro comes up with something tomorrow, because I'm about done with this roller coaster ride.

Cheese? I think that I could eat the whole platter...and down a bottle of wine along with it

With love, "The Crank"

OK...the mood is lifting... but man, for a while there, I was creeping myself out .
Thanks for a place to vent.

With love, Erika

Hey Erika....boy do I sympathize with you on that. I've been up before 4:00 a.m. three nights in a row. Not muscle spasms tho....I'm so sorry you are having that much pain. Its exhausting trying to figure out which drug when and how much. Anyway, hope the Dr appointment brings something useful to light! take care of yourself
love
janet

(((Erika))) spasms are the worst symptom, IMHO…makes me miss Dr. Kevorkian…I never understood why MS patients were his number one patients…until my pain began. Makes me want to leave the planet, but then I wouldn't want to do that to my family.

Hope you're not getting the virus going around-it has symptoms that are flu-like.
But it sounds like all of your auto-immune enemies are ganging up on you…hope it all quiets down soon and leaves you feeling better...

I haven't had to whine lately, but I will be happy to join you in yours,
out oF sympathy and empathy for and with you..

Feel better soon please..

I'm so doped up on Baclofen right now that I think that mistook one of my socks for a bun and ate it for lunch
Otherwise at least the spasms have settled down and the fingers have too.
Now for the headache...Hmmmm. I'm about ready to stick it under a cold tap and just let it freeze off.

I'm sort of wondering if it is a virus too.
There are a lot of sickies around these days and I did go into a grocery store the other day to pick up a few things. Looks like I may have picked up something that wasn't on my list. And I'm so careful about hand washing etc. I even wash or change the packages that products come in.

With love, Erika

I've never had worse pain in my life than the muscle spasms of my inner thighs. Not childbirth, not migraines, not surgery. I was scared to go to sleep. The quinine was working, but then they outlawed it. I'm taking baclofen now, and haven't had one of those bad spasms for quite a while, thank God.

they outlawed quinine? When did that happen?

I know that there's quinine in tonic water. We had a contractor once that worked on something at our house, and one of the things he asked for when we hired him, was to have some tonic water available for him. Apparently he'd gotten malaria somewhere (he might have been a Vietnam vet) and he drank the tonic water to help the symptoms of that, if I remember right, the symptoms of the malaria could be triggered by hot temperatures. Kind of like MS symptoms being triggered by increased temperatures.

Erika, high amounts of baclofen can cause headaches? I've had a monster headache all day. Wonder if it's from the increased dosage…I hate headaches almost as much as spasticity..

It gave me headaches too. The main reason I quit it.