[Erika]

I started taking Amantidine for fatigue and narcoleptic-type sleepiness five days ago. After spending the past days with increasing symptoms (dizziness, spasms, pain, trembling & difficulty swallowing without choking), this morning I called the MS clinic; as I am now unable to move my neck without severe pain or swallow without difficulty and pain.
The neck and upper back muscles have been in full spasm all day and it hurts to even swallow saliva.
In short, the body is a spastic, vibrating mess.

My neuro said to discontinue it and to wait for a couple of days to see if things improve as the drug clears the system. I’m hoping that it is the drug that has been causing these symptoms and not a flare.

I thought that once this stupid disease went from RRMS to SPMS that the flares would stop and that things might just get progressively worse. This round has me concerned though because it has reminded me how quickly things can deteriorate.

Haven’t been able to read or post because of blurred vision and the trembling but those have been less severe in the last couple of hours.
Thank goodness for Word, spell check, copy and paste

Miss you all. Will catch up eventually.

With love, Erika