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-   -   Are We Happy With Our MS DMDs (https://www.neurotalk.org/multiple-sclerosis/19793-happy-ms-dmds.html)

azoyizes 05-27-2007 03:52 PM

Sally, you have a good point there. Scary, but it could be that these major medical companies are very happy to be raking in the bucks for the CRABS, while wanting no cure to be found to end their profits.

Personally, I don't see a cure for MS being found in my lifetime. Honestly, I don't think it is a disease that can be cured. But, maybe since I've had MS for so long, and since I'm struggling to continue to walk and finding it just plain hard to do, that all puts a negative shift in my mind towards this confounded disease.

I don't mean to sound so negative here, I'm just trying to be honest among friends.

AfterMyNap 05-27-2007 04:53 PM

Geez, AZ, you speakum good truth, squaw. I feel the same way, why end the gravy train when the momentum is peaking?

I'm feeling a little hopeless about my walking too. A few steps is my limit and I'm seriously sick of having to make special mental inventories of all the things I need to bring on every 5-step trip, lest I fall away from my rollator before I get there.

DMDs have been a nice step forward, but I'm looking for a leap backward. Cure is nice, reversal is what I want.

azoyizes 05-27-2007 06:11 PM

Exactly, Cindy! I get so discouraged sometimes. This leg weakness started about two years ago for me, and I have detiorated since. It is so hard to say, walk from the car into the library or the store. If I fall, I can't get back up by myself, so I get really paranoid when my DH isn't in sight.

Yet, on a happier note, we moved a few months ago to a one-story home with 1.25 acres. We bought a riding lawn mower, and I finally found something I can do! I drive like a maniac up and down the slopes and around curves. It was one of the best things for me to take up lawnmowing! :D On the mower, I don't have to worry about my legs, or my balance, or anything else come to think of it. I just go!!

Snoopy 05-27-2007 08:43 PM

My problem with the DMDs.....

How can you treat a disease that is not fully understood. And no I do not believe a cure will be found in my lifetime.

SallyC 05-27-2007 08:49 PM

Quote:

Originally Posted by azcoyote (Post 105741)
Sally, you have a good point there. Scary, but it could be that these major medical companies are very happy to be raking in the bucks for the CRABS, while wanting no cure to be found to end their profits.

Personally, I don't see a cure for MS being found in my lifetime. Honestly, I don't think it is a disease that can be cured. But, maybe since I've had MS for so long, and since I'm struggling to continue to walk and finding it just plain hard to do, that all puts a negative shift in my mind towards this confounded disease.

I don't mean to sound so negative here, I'm just trying to be honest among friends.

Actually what I said was more negative than what you said, AZ, and I hope I'm wrong. There has to be another Salk out there, working on a cure for MS, without thinking of lining his pockets..Doesn't there?

I am so sorry for the progression that you've endured. I hope it stops...right now...and waits for a cure.


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